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About Wendy Fry

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So far Wendy Fry has created 9 blog entries.

#MemberMonday

By |2019-06-24T09:55:32-05:00June 24th, 2019|Categories: Uncategorized|

Meet West Coast Parent Ambassador, Karen Masters Foster! This #MemberMonday meet West Coast Parent Ambassador, Karen Masters Foster! Karen lives in Northridge, CA with her husband Jermaine and their 4 children, Audrey, Miles, Clover and Scarlet. Miles was 2 yrs old when genetic testing revealed he had an SCN1A mutation. Though initially diagnosed with [...]

#MemberMonday

By |2019-05-17T13:40:17-05:00June 17th, 2019|Categories: Our Community, Uncategorized|

Meet Southeast Region Parent Ambassador, Kimberly Brorson! This #MemberMonday meet Southeast Parent Ambassador, Kimberly Brorson! Kimberly resides in Fredericksburg, VA with her husband Bendik, Dravet child Lucy, Amelia and twin girls Madeline and Elise. Post Dravet diagnosis for Lucy, Kimberly took leave as a commercial pilot to be a full time care taker for [...]

#MemberMonday

By |2019-05-17T13:52:55-05:00June 10th, 2019|Categories: Our Community, Uncategorized|

Meet Midwest Region Parent Ambassadors, Kathy and Bob Dodd! This #MemberMonday meet Midwest Parent Ambassadors, Kathy and Bob Dodd! Bob and Kathy live in a suburb of Chicago with their 2 daughters, Cameron and Stacy. Stacy, now age 20, had her first seizure in January 1999 and was diagnosed with Dravet Syndrome in August [...]

#MemberMonday

By |2019-05-17T13:12:57-05:00June 3rd, 2019|Categories: Our Community, Uncategorized|

Meet Mountain Region Parent Ambassador, Lynne Howard! This #MemberMonday meet Mountain Region Parent Ambassador: Lynne Howard! Lynne lives in the North Texas area with her husband Elliot, and two daughters Elina and Elissa.  Elissa is their youngest daughter,  diagnosed with Dravet Syndrome in 2012 after genetic testing confirmed SCN1A gene mutation. After taking time off [...]

#MemberMonday

By |2019-05-17T13:34:14-05:00May 27th, 2019|Categories: Our Community, Uncategorized|

Meet West Coast Parent Ambassador, Morgan Turpin! This #MemberMonday meet West Coast Parent Ambassador: Morgan Turpin! Morgan lives just north of San Diego with her husband Sean and their son and daughter. Their oldest, Shayne (now 6), was diagnosed with a mutation in the SCN1A gene when he was fourteen months old. It would [...]

#MemberMonday

By |2019-05-17T13:34:36-05:00May 20th, 2019|Categories: Our Community, Uncategorized|

Meet Mountain Region Parent Ambassador, Gloria Rodriguez! This #MemberMonday meet Mountain Parent Ambassador Gloria Rodriguez! Gloria lives in Pasadena, TX with her husband Ascension and two daughters Madlyn (16) and Grace (5). Grace was diagnosed with Dravet syndrome at 14 months old after a genetic test confirmed an SCN1A gene mutation. Gloria and her [...]

#MemberMonday

By |2019-05-13T08:58:01-05:00May 12th, 2019|Categories: Our Community, Uncategorized|

Meet Midwest Parent Ambassador, Tina McDermott! This #MemberMonday meet Midwest Parent Ambassador: Tina McDermott! Tina and her husband Brad have six children. Their youngest, Ryan, was diagnosed with Dravet Syndrome in 2012 at the age of six. Through fierce advocacy Tina was able to get Ryan the testing he needed to see the proper [...]

#MemberMonday

By |2019-05-13T13:57:38-05:00April 29th, 2019|Categories: Our Community, Uncategorized|

Meet Southeast Parent Ambassador, Shannon Cloud! This #MemberMonday meet Southeast Parent Ambassador: Shannon Cloud! Shannon lives in Smyrna, GA (in the metro Atlanta area) with her husband Blaine and their three children.  Their oldest child, Alaina, was diagnosed with Dravet Syndrome in 2009 at age 4. Shannon is originally from Pickerington, Ohio and graduated [...]

#MemberMonday

By |2019-05-13T13:59:30-05:00April 22nd, 2019|Categories: Our Community, Uncategorized|

Meet Southeast Parent Ambassador, Shannon Cloud! This #MemberMonday meet Board Secretary and fellow Dravet mom, Kate Hintz! Kate’s daughter Morgan was diagnosed with Dravet Syndrome at only 6 months old. Although they received an early diagnosis, Morgan was medically fragile for the first 2 years of life; suffering frequent seizures and related medical complications. Her [...]