Veronica Hood

About Veronica Hood

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So far Veronica Hood has created 27 blog entries.

Gene Therapy for Dravet Syndrome

By |2021-03-26T00:49:10-05:00March 26th, 2021|Categories: Decoding Dravet Blog|

While three new medications have come to market for Dravet syndrome in the past several years, only a portion of patients achieve adequate seizure control. Even for those who experience longer periods of seizure-freedom, the other comorbidities of Dravet syndrome greatly impact quality of life for individuals as well as their families. Therapeutically targeting [...]

Review of: Enhancing glucose metabolism via gluconeogenesis is therapeutic in a zebrafish model of Dravet syndrome

By |2021-03-24T09:16:38-05:00March 24th, 2021|Categories: DSF Research Review|Tags: , , , |

Banerji et al (2021) recently published a manuscript in Brain Communications describing their investigation of metabolic pathways in a zebrafish model of Dravet syndrome. Previous studies had described metabolic deficits in Dravet syndrome generally related to decreased energetic output. The ketogenic diet remains one of the more successful therapies for seizure reduction in Dravet syndrome, [...]

Natural History Study of Children with Dravet Syndrome Begins

By |2021-03-21T22:40:48-05:00March 19th, 2021|Categories: Decoding Dravet Blog|

The first patient was just enrolled in ENVISION, a natural history study being conducted by Encoded Therapeutics. There are 7 recruiting study sites, including one in Australia, and two additional sites are currently being added. The study does not provide any interventions, but rather is an observational study that follows children with Dravet syndrome [...]

New Study of Dravet Syndrome in Adult Patients

By |2021-03-12T01:20:42-05:00March 12th, 2021|Categories: Decoding Dravet Blog|

Dr. Danielle Andrade, an adult neurologist who is an expert in Dravet syndrome (DS), is currently conducting a study of adults with DS to improve the understanding of seizures, symptoms, comorbidities, and daily life as patients age. Part of the study is examining patients that visit Dr. Andrade’s clinic at the University of Toronto, [...]

Dravet Syndrome has New Diagnostic Codes

By |2021-03-11T15:56:29-05:00March 5th, 2021|Categories: Decoding Dravet Blog|

New ICD-10 codes are now in effect for Dravet syndrome. Previously, a patient diagnosed with Dravet syndrome would be entered into the medical coding system under a non-specific epilepsy code that did not fully represent the spectrum of medical needs for an individual with Dravet syndrome. The Dravet Syndrome Foundation worked with our Medical Advisory [...]

SUDEP: Education, Research, and Prevention

By |2021-01-29T10:36:44-05:00January 29th, 2021|Categories: Decoding Dravet Blog|

Sudden unexpected death in epilepsy (SUDEP) is a topic that brings up difficult and complex emotions, and, as such, it often goes undiscussed. However, talking about SUDEP can empower families with awareness and preventative strategies, literally helping to save lives. Additionally, increased education surrounding SUDEP lends itself to advocacy efforts to advance research and end [...]

Why be cautious about sharing personal experiences in an active clinical trial?

By |2021-01-22T13:58:13-05:00January 22nd, 2021|Categories: Decoding Dravet Blog|

With so many clinical trials for Dravet syndrome actively enrolling, it is an important time to consider the impacts that talking about experiences in an ongoing trial can have on the outcomes. If you are participating in a clinical trial and observing particularly profound changes following treatment, it can be quite tempting to share that [...]

A Recap of “Curing the Epilepsies 2021”

By |2021-01-08T01:12:00-05:00January 8th, 2021|Categories: Decoding Dravet Blog|

On January 5-7, 2021, the NIH/NINDS (National Institute of Health/ National Institute of Neurological Disorders and Stroke) held the“Curing the Epilepsies 2021: Setting Research Priorities” conference in a virtual format. The goal of the conference was to guide updates to the current Epilepsy Research Benchmarks and Transformative Research Priorities with collaborative feedback from all the [...]

DSF Announces 2020 Grant Recipients

By |2021-02-24T17:20:06-05:00December 4th, 2020|Categories: Decoding Dravet Blog|

The Dravet Syndrome Foundation (DSF) announced the 2020 grant awardees last night at the 11th annual Research Roundtable. DSF is excited to be funding two 2-year research grants and an additional 1-year postdoctoral fellowship. Following this year’s awards, DSF’s total contribution to research projects will be nearly $5 million. The first of the 2-year grants [...]

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