Upcoming EL-PFDD Meeting February 3rd!


About Veronica Hood

Dr. Hood joined the DSF staff in 2020. She has an MS in Biology from East Tennessee State University and a PhD in Cell, Stem Cell, and Developmental Biology from the University of Colorado. She spent 10 years in laboratory settings researching how small changes in genetic and molecular regulation contribute to complex neurological diseases. In 2007, Veronica had a son, Gabriel, who faced severe developmental challenges. Gabriel presented with initial seizure activity within his first two months of life, and his medical needs quickly became quite complex. Despite endless testing, a diagnosis remained elusive, and at the age of 8, Gabriel passed away. These experiences fueled Veronica’s passion to advance medical research and shaped her desire to support other families facing similar challenges. She hopes to apply her scientific knowledge and her understanding of the caregiver experience to support the Dravet community by facilitating Dravet-focused research and acting as a liaison between researchers, professionals, and families.

ILAE Transition of Care Survey

By |2022-01-21T00:51:53-05:00January 21st, 2022|Categories: Decoding Dravet Blog|

The transition from pediatric to adult health care providers is incredibly challenging for individuals with complex medical needs. DSF strives to promote research and the development of new tools to aid families in navigating the transition process. Just last year, DSF partnered with Dr. Danielle Andrade and the rest of the DSF Medical Advisory Board [...]

How to Read a Scientific Paper; Part 2: Breaking Down the Information

By |2022-01-14T02:15:00-05:00January 14th, 2022|Categories: Decoding Dravet Blog|

Today's blog post was created in collaboration with Tanya Brown, PhD the Science Director for TESS Research Foundation and was cross-posted to the Science Simplified Blog. Reading a scientific research article can be really daunting. Scientists who have studied a specific topic for many years are more likely to use “jargon” or very specific and [...]

How to Read a Scientific Paper; Part 1: Anatomy of a Research Article

By |2021-12-17T20:54:41-05:00December 17th, 2021|Categories: Decoding Dravet Blog|

Today's blog post was created in collaboration with Tanya Brown, PhD the Science Director for TESS Research Foundation and was cross-posted to the Science Simplified Blog. Have you ever wondered how to read a scientific paper? Reading a scientific paper, also called a research article, is different from reading a newspaper article. It can be [...]

2021 AES Meeting Recap

By |2021-12-10T11:21:18-05:00December 10th, 2021|Categories: Decoding Dravet Blog|

The American Epilepsy Society (AES) held its annual meeting on December 3-7, 2021. This was my first time attending the conference in person, as last year the event was only held virtually. I was really impacted by the vast amount of research focused on Dravet syndrome. For a rare disease, it is not mentioned rarely [...]

DSF Announces Funding for Five New Research Grants

By |2021-12-02T08:59:38-05:00December 3rd, 2021|Categories: Decoding Dravet Blog|

Last night at their annual Research Roundtable Meeting, the Dravet Syndrome Foundation (DSF) announced funding for five new research grants. DSF is pleased to be funding grants that focus on important topics for individuals with Dravet syndrome, including investigation of metabolic dysfunction, exploration of novel therapeutic targets for disease-modifying therapies, and exploration of changes to [...]

Dravet Syndrome Transition Guide

By |2021-10-07T23:54:20-05:00October 8th, 2021|Categories: Decoding Dravet Blog|

Transition of care, or the process of moving from pediatric to adult health care providers, is one of the most challenging issues facing adults with Dravet syndrome and their families. Transition of care can be challenging in general when a patient has a complex medical history and requires a large team of health care providers [...]

Highlights from the Stem Cell and Gene Therapy for Neurodevelopment Disorders Conference

By |2021-09-30T23:59:57-05:00October 1st, 2021|Categories: Decoding Dravet Blog|

Last week, I had the opportunity to attend the first annual Stem Cell and Gene Therapy for Neurodevelopmental Disorders Conference hosted by the University of California (UC) Davis MIND Institute. The conference brought together many leaders in academic research focused on finding restorative cures for genetic diseases like Dravet syndrome. Although the conference was only [...]

Surgery & Procedures in Dravet Syndrome

By |2021-08-25T09:41:06-05:00August 27th, 2021|Categories: Decoding Dravet Blog|

Patients with Dravet syndrome often require a surgery or other invasive procedure at some point in their life. While there are no specific surgical procedures that are specifically required due to the diagnosis of Dravet syndrome, there are some procedures that occur more commonly, including: feeding tube placement (i.e., g-tube, j-tube), VNS (vagus nerve stimulator) [...]

Dravet Syndrome and COVID-19 Vaccination

By |2021-08-13T01:15:21-05:00August 13th, 2021|Categories: Decoding Dravet Blog|

As the COVID-19 pandemic continues, vaccination has become a major tool in combating the spread and mitigating the symptomatic infections caused by the novel coronavirus. Vaccination can be a topic of particular concern for individuals with Dravet syndrome (DS) and their families given that vaccines are a common seizure trigger in this disorder. Early childhood [...]

Is epilepsy surgery for seizure control an option for individuals with Dravet syndrome?

By |2021-07-28T14:20:32-05:00July 30th, 2021|Categories: Decoding Dravet Blog|

DSF has received many questions about epilepsy surgery for patients with Dravet syndrome recently. If this is something you are considering for your child, it is crucial to know your options and to learn more about what we currently know regarding surgery for patients with Dravet syndrome. It is important to remember that every patient’s [...]


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