The NFL’s “My Cause, My Cleats” campaign is a fundraiser that allows players and staff to express their commitment to the causes that are most important to them, and wear their hearts on their feet. We are honored that Charles Byrd, an assistant NFL strength and conditioning coach for the New Orleans Saints, rocked a pair of […]
Myla-Rose and “My Cause, My Cleats” Read More »
As we approach the end of the year, we are proud to look back on our achievements. DSF started in 2009, when four parents came together looking for connection with one another and a desire to improve outcomes for their own children who had been diagnosed with Dravet syndrome. Now, 14 years later, the success
2024 DSF Annual Campaign Read More »
Cheyenne Wolf, a Central New Jersey native, brings a wealth of experience and a passion for non-profit development to her role as Development Coordinator. A graduate of Hightstown High School, Class of ’09, Cheyenne’s academic journey began when she was awarded the merit-based ‘NJ STARS’ scholarship, affording her studies at Mercer County Community College. In
Cheyenne Wolf – Development Coordinator Read More »
Have you heard the news? Dravet Syndrome Foundation (DSF) has earned a Four-Star rating by Charity Navigator, their highest possible rating. Their third-party accreditation validates our organization’s operational excellence and our rating reflects our strong financial health and ongoing accountability and financial transparency. And, this rating designates DSF as an official “Give with Confidence” charity!
DSF is designated an official “Give with Confidence” charity by Charity Navigator! Read More »
Please join us in welcoming our two newest board members, Dr. Gail Farfel and Dr. Bill Kirshner, who will help guide the foundation’s mission Those who serve on our Board of Directors do so on a voluntary basis, without compensation. We appreciate each of them sharing their gifts and talents with the organization. Gail Farfel,
Welcome our Newest Board Members! Read More »
We are excited to add three new staff members to help us better serve our patient community. Join me in welcoming Shannon Cloud, Rich Maxey, and Austin Watson to #teamDSF! Shannon Cloud – Patient Advocacy Director Shannon lives in Smyrna, GA with her husband Blaine and their three children. Their oldest child, Alaina, had her
Welcome our Newest Staff Members! Read More »
After 37 years as a family practitioner, Bill and his wife Ileen enjoyed his retirement over the last 4 years at their home 30 miles east of Seattle. Together they enjoy 5 children and 5 grandchildren. Their youngest grandchild Zoe lives with her parents in San Francisco. She is now 2 years old, but was
The 5th annual Dance for Dravet will take place on Friday, October 6th at Third Degree Glass Factory in St Louis, Missouri. Started in 2019 by the Brennan and Odlaug families, the event was designed to raise awareness of Dravet syndrome and raise funds for DSF, in honor of family member Anna Odlaug who is
5th Annual Dance for Dravet – October 6th! Read More »
Rich was born, raised, and currently resides in Enumclaw, WA. He has spent most of his career working in a local manufacturing plant programming welding robots and as an IT Analyst. He is married and has two boys, Owen and Zachary. Rich now spends most of his time troubleshooting and repairing off-road vehicles and buggies.
Rich Maxey – Family & Caregiver Engagement Coordinator Read More »
As the Family Network Coordinator, Austin oversees the Family Ambassador and Brand Ambassador Programs, acts as a moderator for online support groups, organizes gatherings both digital and live, acts as liaison between families and DSF, and other duties to further the mission of DSF. Originally from Northwest Washington, Austin lives in Boise, Idaho with her
Austin Watson – Family Network Coordinator Read More »
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