About Jamie Cohen

This author has not yet filled in any details.
So far Jamie Cohen has created 143 blog entries.

Last Call to Party in Your PJs

By |2021-07-15T10:10:47-05:00July 15th, 2021|Categories: Events|

Last Call to Party in Your PJs for Dravet! It's not too late!  Register by Friday, July 16th to receive your party pack in time! Mark your calendars and join DSF on July 24th to Party in Your PJs for Dravet. We decided to bring this virtual interactive pajama party back for 2021 and YOU are [...]

Dravet Photo Diary

By |2021-07-14T13:04:57-05:00July 15th, 2021|Categories: Events|

Dravet Photo Diaries Contest Zogenix is hosting a Photo Diary charitable campaign and contest on Facebook. For every “Like” or share of a photo, Zogenix will donate $25 to both Dravet Syndrome Foundation and Epilepsy Foundation, up to $50,000 in total. At the end of the campaign on July 19, the family’s submission [...]

Board Member Opportunity

By |2021-07-15T10:49:07-05:00July 15th, 2021|Categories: Our Community|

DSF is looking for new board members! Are you looking for a way to truly have an impact on the future of Dravet syndrome? DSF is currently seeking professional, committed individuals who are passionate about finding a cure for Dravet syndrome for their Board of Directors. Board positions are a voluntary, three-year term [...]

Caregiver Connect Grants

By |2021-07-15T10:12:38-05:00July 15th, 2021|Categories: DSF Programs|

Caregiver Connect Grants Dravet Syndrome Foundation (DSF) has long recognized the many needs within our community, particularly the burden of caregivers. It is a lot of work, mentally and physically. Our caregiver community frequently talks about feelings of isolation, depression about the diagnosis, and anxiety over what their child’s future looks like. On [...]

Community Spotlight

By |2021-07-15T10:11:42-05:00July 15th, 2021|Categories: Our Community|

Meet Sarah and Avery! In this Community Spotlight meet Sarah Lango and her daughter Avery. For Dravet Awareness month, Sarah reached out to several local businesses in her small town to raise awareness for Dravet syndrome and Avery’s journey. Each business handed out brochures and postcards. In many cases, businesses donated a portion [...]

Community Spotlight

By |2021-06-30T13:06:21-05:00June 30th, 2021|Categories: Our Community|

Remembering those we have lost In this Community Spotlight we honor those that we have lost to Dravet syndrome. Evan Nicholas Bartley Zackary Blake Bell Tanner Berry Gabrielle Alexis Berryman Ella Elizabeth Brearley Megan Alexandra Buss Dawson Luke Causey Bethany Childers Yotom Cohen Scott C. Crossland Clover Dohman Tyler Francis Eimont Charlotte [...]

Community Spotlight

By |2021-06-30T13:06:12-05:00June 30th, 2021|Categories: Our Community|

Meet our Dravet Warriors! In this Community Spotlight meet our Dravet Warriors! Our Dravet Stores page is such an integral part of our website. It is a place to direct family and friends to learn more about our children and their journey along with Dravet syndrome itself.  However, it also serves as a [...]

Community Spotlight

By |2021-06-30T12:36:02-05:00June 30th, 2021|Categories: Our Community|

Meet Tiffany! In this Community Spotlight meet Tiffany Rowan. Tiffany’s daughter, Laney, had her first seizure at 4 months old and was diagnosed with Dravet syndrome at 6 months old. Tiffany struggled with having to administer multiple medications several times a day to her infant daughter. Between not being able to open capsule [...]

Community Spotlight

By |2021-06-30T11:51:19-05:00June 30th, 2021|Categories: Our Community|

Meet the Jacobs Family! In this Community Spotlight meet the Jacobs Family. This family works tirelessly to advocate for their son Dominic and the entire Dravet community by hosting awareness tables at local events. For Dravet Awareness month, they ran a lemonade stand and raised over $1200 and counting for DSF! We are [...]

Community Spotlight

By |2021-06-30T11:52:04-05:00June 30th, 2021|Categories: Our Community|

Meet Elizabeth and Madison! In this Community Spotlight meet Elizabeth and her twin sister, Madison. Elizabeth wrote us this really sweet letter and we just had to share it with our community! To begin, I would like to thank you for all the hard work you do. From holding conventions to zoom meetings, [...]

Go to Top