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About Jamie Cohen

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So far Jamie Cohen has created 78 blog entries.

New Staff Member

By |2020-07-15T13:04:56-05:00July 15th, 2020|Categories: Our Community|

Meet our new Research Coordinator, Veronica Hood, PhD! Welcome to Our New Staff Member! We are so excited to welcome Veronica Hood, PhD, to DSF as our new Research Coordinator. Veronica has an MS in Biology from East Tennessee State University and a PhD in Cell, Stem Cell, and Developmental Biology from the University [...]

New Board Members

By |2020-06-15T14:44:32-05:00June 16th, 2020|Categories: Our Community|

Welcome New Board Members Welcome to Our New Board Members! Please join us in welcoming our two newest board members, Ashley Kerns and Dr. Joseph Sullivan, who officially began their terms on April 1, 2020. Ashley resides in Westlake, Louisiana with her three children, Michael (age 9), Samuel (age 6), and Katie (age 1). Katie was [...]

#MemberMonday Spotlight

By |2020-06-15T13:44:05-05:00June 16th, 2020|Categories: Our Community|

Meet Tina & Ryan! This #MemberMonday meet Ryan and his mom, Tina McDermott. Tina is an active member in the Dravet syndrome community. She serves as a DSF Family Ambassador in the midwest region and also as a DSF Social Ambassador. Her youngest son, Ryan, was diagnosed with Dravet syndrome in 2012 at [...]

Call for Research Proposals

By |2020-05-14T11:18:32-05:00May 15th, 2020|Categories: Research / Treatments|

Applications Due September 4, 2020 The 2020 DSF Research Grant Program is open! Our Research Grant Program was established in 2010 to support investigator sponsored research in the field of Dravet syndrome, which historically has been critically underfunded. Our goal is to support and promote innovative approaches in Dravet syndrome research across disciplines [...]

June is Awareness Month

By |2020-05-14T16:39:02-05:00May 15th, 2020|Categories: Events|

#CUREDRAVET June is Dravet Syndrome Awareness month and June 23rd is International Dravet Syndrome Awareness Day. We encourage you each to start thinking ahead about some of the ways you can help DSF’s efforts this June to spread the word about Dravet syndrome and the needs of our community. DRAVET AWARENESS T-SHIRT CAMPAIGN Thank [...]

Shine Forward With Dravet

By |2020-05-14T11:18:20-05:00May 15th, 2020|Categories: Our Community|

Zogenix Offers New Website Shine Forward With Dravet is brought to you by Zogenix, Inc. Shine Forward With Dravet is a website dedicated to sharing resources and inspiration for families living with Dravet syndrome. Whether you are a parent, sibling, friend, or other family member of someone with Dravet syndrome, Shine Forward With [...]

Patient Assistance Grants

By |2020-05-09T09:47:06-05:00April 17th, 2020|Categories: DSF Programs|

Patient Assistance Grant Program Open DSF has long recognized the financial burden our families face and has offered our Patient Assistance Grant (PAG) program since we were first founded in 2009. While it cannot fulfill all of the financial needs within our community, we hope that it offers a positive avenue to obtain [...]

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