About Jamie Cohen

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So far Jamie Cohen has created 57 blog entries.

VALTOCO® Nasal Rescue

By |2020-01-15T11:42:51-05:00January 15th, 2020|Categories: Research / Treatments|

VALTOCO® Nasal Rescue Neurelis, Inc., recently announced the U.S. Food and Drug Administration (FDA) has approved VALTOCO® (diazepam nasal spray) as an acute treatment of intermittent stereotypic episodes of frequent seizure activity (i.e., seizure clusters, acute repetitive seizures) that are distinct from a patient's usual seizure pattern in people with epilepsy 6 years [...]

Video Education Session

By |2020-01-15T11:44:44-05:00January 15th, 2020|Categories: DSF Programs|

Video Education Session February 13, 2020 Dravet Syndrome Foundation is pleased to announce a new, live video education session! On Thursday, February 13, 2020 at 2pm ET, head to RareDiseaseLive to hear a dialogue between medical specialists and families facing Dravet syndrome. Panelists include: Kelly G. Knupp, MD, MSCS Dagmar Amtmann, PhD Nicole [...]

Birthday Fundraisers

By |2020-01-15T10:00:24-05:00January 15th, 2020|Categories: Our Community|

2019 Facebook Birthday Thanks We set ourselves a sizable goal in 2019 of raising $100K for Facebook Birthdays! Thanks to everyone that used their birthday as a way to spread awareness and raise funds. We not only met our goal, but we have surpassed that goal by over $27K!!! Every gift, no matter [...]

Double Down for Dravet: H-Town

By |2020-01-15T10:00:08-05:00January 15th, 2020|Categories: Events|

2020 Double Down for Dravet: H-Town Join us for a night of fun & fundraising at Double Down for Dravet: H-Town. Taking place at Armadillo Palace in Houston, the evening includes appetizers, dinner, drinks, casino games, and silent and live auctions. Tickets are now on sale for $100 per person. Purchase your tickets [...]

Research Coordinator

By |2020-01-22T19:29:02-05:00January 15th, 2020|Categories: DSF Programs|

DSF is Hiring a Research Coordinator We’re Hiring a Research Coordinator! Are you a scientist who absolutely loves the work that Dravet Syndrome Foundation (DSF) does, but is looking for a change from the lab environment? We have just the opportunity for you! We’re looking for a community-oriented scientist to direct DSF’s research efforts. DSF [...]

2019 Annual Campaign

By |2019-12-16T11:40:47-05:00December 17th, 2019|Categories: Events|

2019 Annual Campaign We hope you will join us as a supporter at DSF’s Annual Campaign and help us achieve our fundraising goal of $175,000. There are 2 easy ways you can give today: Online at www.dsfannualcampaign.org By mail, to DSF, PO Box 3026, Cherry Hill, NJ 08034 Please know that our community [...]

NAYZILAM®Nasal Rescue

By |2019-12-16T17:54:08-05:00December 17th, 2019|Categories: Research / Treatments|

NAYZILAM® Nasal Rescue Availaibility UCB recently announced availability of NAYZILAM® (midazolam) Nasal Spray CIV in retail pharmacies. NAYZILAM is the first and only nasal rescue treatment for seizure clusters in the U.S. It is a ready-to-use solution that can be used when and where a seizure cluster occurs and can be administered by [...]

Community Thanks

By |2019-12-17T09:07:38-05:00December 17th, 2019|Categories: Our Community|

A Year of Thanks We have put our heads together to confront the many problems faced by the Dravet syndrome community and together we have done so much. You’ve stood with us along the way. These changes have happened through the unity and support of our community and because of YOU. You Bashed. [...]

2019 Grant Awards

By |2019-12-16T17:00:40-05:00December 17th, 2019|Categories: Research / Treatments|

2019 DSF Grant Awardees DSF is dedicated to funding the highest caliber research on Dravet syndrome and associated epilepsies. Our focus is on research projects that will find new treatments and improve the quality of life for those living with an ion channel epilepsy. We place a high priority on funding research that [...]

Research Roundtable

By |2019-12-16T14:52:46-05:00December 17th, 2019|Categories: DSF Programs|

1oth Annual Research Roundtable The Dravet Syndrome Foundation was honored to host our 10th annual Research Roundtable on December 5, 2019 in conjunction with the American Epilepsy Society’s annual meeting in Baltimore, MD.  The Roundtable began in 2010 with 10-15 scientists and parents brainstorming how to move Dravet syndrome research forward. Ten years [...]