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About Jamie Cohen

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So far Jamie Cohen has created 4 blog entries.

Free Testing

By |2019-05-15T10:18:57-05:00May 15th, 2019|Categories: Research / Treatments|

Behind the Seizures Expansion BioMarin, Invitae, Stoke Therapeutics, and Xenon Pharmaceuticals recently announced the expansion of Behind the Seizures. Previously available to patients ages 2-4 years, the program has expanded to offers Invitae's comprehensive epilepsy panel at no cost to any child up to 60 months who has had an unprovoked seizure. More [...]

Save the Date!

By |2019-05-15T10:16:13-05:00May 15th, 2019|Categories: DSF Programs|

2019 Day of Dravet DSF's Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of a DSF's shared vision for a better outcome for those affected by Dravet syndrome. Participants come away [...]

Seizure Burden

By |2019-05-13T13:51:17-05:00May 15th, 2019|Categories: Research / Treatments|

Seizure burden in severe early-life epilepsy: Perspectives from parents DSF is pleased to share a recent publication by Anne Berg, PhD: Seizure burden in severe early-life epilepsy: Perspectives from parents. Dr. Berg is a Research Professor of Pediatrics (Neurology and Epilepsy) at Ann and Robert H Lurie Children's Hospital of Chicago with over [...]

Steps: Lowell

By |2019-05-15T10:19:56-05:00May 15th, 2019|Categories: Events|

2019 Steps Toward a Cure: Lowell, MA Join 14 year old event host Becca for a fun, family-friendly event that includes a 1-2 mile walk, lunch, kids' activities and a raffle at Steps Toward a Cure: Lowell, MA At 9 months old Isaias was placed with his forever family while his half sister, [...]