About DSF 2017-05-03T21:39:27+00:00

Raising Hope & Changing Lives
Through Research

The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families.

We Understand

  • The ongoing need to fund innovative research.
  • The urgency in finding better treatments.
  • The motivation of our donors to make an impact specifically in the fields of Dravet syndrome and related epilepsies.
  • The importance of transparency and accountability of not only our organization, but the researchers that we fund.
  • The need for global collaboration in order to find a cure.


Dravet Syndrome Foundation was founded by a group of parents with the purpose of expediting research to find a cure and better treatments for their afflicted children. It was established in the state of Connecticut and was designated a tax-exempt public charity in the United States in October 2009 by the Internal Revenue Service under Section 501(c)(3).

Letter of Determination for 501(c)(3)


As a non-profit organization, Dravet Syndrome Foundation realizes the significance of financial transparency to our supporters. We pride ourselves on maintaining operating expenses at a minimum to ensure that the generous gift of every donor truly brings us one step closer towards a cure. DSF is registered as a tax-exempt public charity by the Internal Revenue Service under Section 501(c)(3).

DSF’s tax identification number is 27-0924627.

Tax Filings and Financial Statements