Super Siblings Camp

DSF Super Sibling Camp is available for siblings of a child with Dravet syndrome, whose parent(s) are registered to attend the conference. Children must be at least 4 years old and potty-trained to attend. Siblings 16+ can volunteer to participate as a team leader for the camp. The cost for camp includes all activities, as well as breakfast, lunch and snacks. The camp schedule coincides with conference sessions each day.

Onsite activities and offsite field trips are planned for participants. If you do not want your child to participate in offsite activities, you will need to arrange for separate childcare for your child during that time. No children (or patients with Dravet syndrome) are permitted in sessions, as they are being recorded.

Registration fees and camper forms are due by June 10th. 

Scholarships are available for families in financial need. For questions on the program, email us at [email protected].

Pay Registration Fees
Complete Camper Forms

Camp Agenda (subject to change)

Fri, June 24 Children 10 & underChildren 11+
8:00am-8:30amDrop-offDrop-off
8:30am-9:00amBreakfastBreakfast
9:00am-10:30amVIP Sibling Workshop

Having a brother or sister with Dravet syndrome can be challenging. The VIP Sibling workshop provides an opportunity for siblings to learn about the VIP Sibling resources that address the needs of siblings. Within a nurturing and fun environment siblings meet and bond with peers who are experiencing similar circumstances.

VIP Sibling Workshop

Having a brother or sister with Dravet syndrome can be challenging. The VIP Sibling workshop provides an opportunity for siblings to learn about the VIP Sibling resources that address the needs of siblings. Within a nurturing and fun environment siblings meet and bond with peers who are experiencing similar circumstances.

10:30am-12:00pmBuild A BearHip Hop Fundamentals
Led by Metal
12:00pm-1:00pmLunchLunch
1:00pm-2:30pmHip Hop Fundamentals
Led by Metal 
Build a Bear
2:30pm-3:30pmWalk to MELT Ice CreamWalk to MELT Ice Cream
3:30pm-5:00pmHip Hop Fundamentals – Group Session
Led by Metal 
Hip Hop Fundamentals – Group Session
Led by Metal 
5:00pm-5:15pmPick upPick up
Sat, June 25 Children 10 & underChildren 11+
8:00am-9:00amWings of Hope Butterfly Release & Breakfast

Sibs can leave after the release with Ms. Katie for camp

Wings of Hope Butterfly Release & Breakfast

Sibs can leave after the release with Ms. Katie for camp

9:00am-10:00amTBATBA
10:45am-4:15pmOffsite outing to Main Event for lunch, bowling, Laser Tag, Gravity Ropes, and arcade.Offsite outing to Main Event for lunch, bowling, Laser Tag, Gravity Ropes, and arcade.
4:15pm-5:00pmWrap Up and GoodbyesWrap Up and Goodbyes
5:00pm-5:15pmPick upPick up

Our 2022 Camp is supported by: