Here are some suggestions to make your trip less stressful:
- Make sure you have your current health insurance card/information in case of any medical emergencies. Review your policy regarding emergency care when traveling. Bring a hard copy of your Seizure Action Plan.
- Place medications in your carry-on bag and make sure to bring an extra week’s worth to be safe.
- Pack sunscreen and cooling vests.
How often and where is the conference held?
DSF typically hosts its Family & Professional Conference in-person every 2 years. The location changes from region to region across the U.S. The location for our 2022 event will be held at The Renaissance Worthington, in collaboration with Cook Children’s Medical Center, in Fort Worth, Texas. Our last in-person conference was held in 2018 in Denver, Colorado, with a mini virtual conference held in 2021.
Is onsite registration available?
Onsite registration IS NOT available. All attendees must register for the event by Friday, June 10th.
What is included in my registration fee?
A 3-day family registration fee includes admission to all sessions, breakfast and lunch each day and our Thursday evening meet and greet dinner. Thanks to the generosity of our sponsors, all family members and caregivers in attendance are also invited to our family events on Friday and Saturday evening. A one day professional registration includes admission to all sessions on that day, as well as breakfast and lunch. CME and CNE credits are available for Friday sessions.
What is the cancellation policy?
Cancellation requests must be submitted in writing to [email protected] Cancellation requests received on or before May 27th are refundable, subject to a $50 administrative fee.
Cancellation requests received after May 22nd, are nonrefundable. Exceptions may be made for family emergencies and must be submitted via email to [email protected]foundation.org.
No-shows at the 2022 Family & Professional Conference are not eligible for a refund.
If you cancel and are entitled to a refund, you can expect the refund within 30 days. All refunds will be issued back to the original payment type. If the event is rescheduled due to pandemic concerns, all registrants will receive a full refund.
Is conference pass sharing allowed?
We will once again offer conference pass sharing for families. Two parents or a parent and caregiver may share one conference registration if they are taking turns caring for a Dravet child onsite. Only one person per pass will be permitted in sessions at any one time. You must fill out the name of the 2nd person who is sharing your pass at the time of registration.
Are scholarships available?
We are working on sponsorship for a Family Scholarship Program. Check back in March 2022 for an update.
Are children allowed in the conference sessions?
Children are not permitted in any sessions on Friday and Saturday. We are recording sessions to share with families and professionals who are unable to attend in person. We recommend that you sign up siblings to participate in Super Siblings Camp during sessions. If your Dravet child is in attendance, we recommend that you bring a caregiver who can stay with them in our Dravet Hospitality Room at the hotel.
Is there onsite patient care and/or childcare available?
Activity rooms will be available for patients with Dravet syndrome at no cost at the hotel, but they must have a caregiver in attendance with them at all times. No nursing staff or aides will be provided, so please plan accordingly for your child’s care. There will be activities provided.
We will once again offer our Sibling Day Camp for a small fee, for children 4-17 years old. Siblings will have the opportunity to connect with one another while doing onsite and offsite activities with volunteer staff. Breakfast and lunch are included with their registration.
What is the dress code?
While there is no set dress code, we suggest business casual for the sessions.
What is the COVID-19 Safety Protocol for the event?
DSF will strictly follow COVID-19 safety procedures as outlined by the Centers for Disease Control and Prevention, the World Health Organization, the Occupational Safety and Health Administration, the State of Texas, the City of Fort Worth, and any other governing Federal or local government agency. You can find a list of our current safety protocola at this link, and we will continue to monitor the situation and adapt our protocol as needed before and during the event.
What is the closest hospital?
Cook Children’s Medical Center offers 24 hour ER services and many of the staff are familiar with Dravet syndrome.
Cook Children’s Medical Center
801 7th Avenue
Fort Worth, TX 76104
Additional questions, not covered here?
Email: [email protected]