SAVE THE DATE!

We are so excited to announce that we are planning our 5th DSF Biennial Conference on June 23-25, 2022, in collaboration with Cook Children’s Medical Center in Fort Worth, Texas. We are looking forward to finally seeing our community back in person!

This 3-day event is unique in that it is designed to unite all groups committed to improving the lives of those with Dravet syndrome – including families, caregivers, clinicians, researchers and professionals in the pharmaceutical industry. There will be speaker presentations on the latest advances in research as well as sessions with up to date information impacting patient care. This event allows the opportunity to foster new relationships and collaborations, both for families and professionals. On Friday, June 24th, there are two continuing medical education session tracks for healthcare professionals that caregivers are also encouraged to attend. On Saturday, June 25th, all of our sessions are on topics addressing caregiver concerns, which will help guide the management and care of patients with Dravet syndrome. 

Since this important educational event only happens every 2 years, we want to offer an uninterrupted experience for those in attendance, as well as the ability to share recorded sessions with families and professionals who are unable to attend. Since sessions are being recorded, no Dravet patients (children or adults) or siblings under 18 are permitted in conference sessions. We recognize that this may make it difficult for some parents or caregivers to attend. To attempt to accommodate everyone’s unique situation, there will be a hospitality suite at the hotel for Dravet patients and their caregivers during the day. We will also offer our daily sibling camp for siblings 4 and older. Everyone is welcome at our evening social events on Friday and Saturday. Recorded sessions will be available on-demand a few weeks after the event.

Conference registration and our conference agenda will be available in January. Be sure to bookmark our conference webpage and check back!

Special thanks to Dr. Scott Perry for his assistance in planning this meeting.  

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