Upcoming EL-PFDD Meeting February 3rd!


How to Read a Scientific Paper; Part 1: Anatomy of a Research Article

By |2021-12-17T20:54:41-05:00December 17th, 2021|Categories: Decoding Dravet Blog|

Today's blog post was created in collaboration with Tanya Brown, PhD the Science Director for TESS Research Foundation and was cross-posted to the Science Simplified Blog. Have you ever wondered how to read a scientific paper? Reading a scientific paper, also called a research article, is different from reading a newspaper article. It can be [...]

Research Roundtable

By |2021-12-16T10:24:50-05:00December 16th, 2021|Categories: DSF Programs|

12th Annual Research Roundtable The Dravet Syndrome Foundation was honored to host our 12th annual Research Roundtable on December 2nd, 2021, the evening prior to the annual American Epilepsy Society (AES) Meeting. Following the 2020 virtual-only event, it felt electric to be gathered together in person to discuss advances in Dravet syndrome research. [...]

2021 Annual Campaign

By |2022-01-24T05:19:37-05:00December 16th, 2021|Categories: Events|

2021 Annual Campaign We hope you will join us as a supporter at DSF’s Annual Campaign and help us achieve our fundraising goal of $150,000. There are 2 easy ways you can give today: Online at www.dsfannualcampaign.org By mail, to DSF, PO Box 3026, Cherry Hill, NJ 08034 Please know that our community [...]

Community Spotlight

By |2022-01-21T04:08:54-05:00December 16th, 2021|Categories: Events, Our Community|Tags: |

Meet Kendra R. Mulholland, DNP, MSN, APRN-CNP Meet Kendra R. Mulholland, DNP, MSN, APRN-CNP In this Community Spotlight, meet Kendra R. Mulholland, DNP, MSN, APRN-CNP! Dr. Kendra Mulholland is a board-certified Family Nurse Practitioner licensed by the Ohio Board of Nursing and certified by the American Association of Nurse Practitioners. She is the [...]

2021 Grant Awards

By |2021-12-16T10:59:31-05:00December 16th, 2021|Categories: Research / Treatments|

2021 DSF Grant Awardees DSF is dedicated to funding the highest caliber research on Dravet syndrome and associated epilepsies. Our focus is on research projects that will find new treatments and improve the quality of life for those living with an ion channel epilepsy. We place a high priority on funding research that [...]

AES Meeting Summary

By |2021-12-16T10:26:52-05:00December 16th, 2021|Categories: Research / Treatments|

AES 2021 Meeting Summary On December 3-7th, 2021, the American Epilepsy Society (AES) held its annual conference to bring together clinicians and scientists on the cutting edge of epilepsy research. This year had a multitude of presentations related to Dravet syndrome, making for an exciting few days focused on what we have learned [...]

2021 AES Meeting Recap

By |2021-12-10T11:21:18-05:00December 10th, 2021|Categories: Decoding Dravet Blog|

The American Epilepsy Society (AES) held its annual meeting on December 3-7, 2021. This was my first time attending the conference in person, as last year the event was only held virtually. I was really impacted by the vast amount of research focused on Dravet syndrome. For a rare disease, it is not mentioned rarely [...]

DSF Announces Funding for Five New Research Grants

By |2021-12-02T08:59:38-05:00December 3rd, 2021|Categories: Decoding Dravet Blog|

Last night at their annual Research Roundtable Meeting, the Dravet Syndrome Foundation (DSF) announced funding for five new research grants. DSF is pleased to be funding grants that focus on important topics for individuals with Dravet syndrome, including investigation of metabolic dysfunction, exploration of novel therapeutic targets for disease-modifying therapies, and exploration of changes to [...]


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