I’m Thankful for DSF and the Dravet Community

By |2021-11-24T13:41:47-05:00November 26th, 2021|Categories: Decoding Dravet Blog|

Thanksgiving is the perfect time to reflect on the year and what we are thankful for. While nobody’s life is perfect, those of us in the Dravet syndrome patient community definitely have our fair share of struggles and tough days. Sometimes it can be difficult to focus on the positive and have hope for the [...]

Veronica Hood, PhD

By |2021-11-17T15:46:45-05:00November 17th, 2021|Categories: Uncategorized|

Veronica joined DSF in 2020. She has an MS in Biology from East Tennessee State University and a PhD in Cell, Stem Cell, and Developmental Biology from the University of Colorado. She spent 10 years in laboratory settings researching how small changes in genetic and molecular regulation contribute to complex neurological diseases. In 2007, [...]

John Oakley, MD, PhD

By |2021-11-17T15:42:54-05:00November 17th, 2021|Categories: Uncategorized|

John Christopher Oakley, M.D., Ph.D., is a board certified neurologist and a UW associate professor of Neurology and an adjunct associate professor of Pharmacology.Dr. Oakley specializes in epilepsy. He strives to create active partnerships with his patients to achieve the best possible outcomes. Dr. Oakley earned his M.D. and Ph.D. at the UW. His [...]

Christopher Ahern, PhD

By |2021-11-29T11:33:15-05:00November 17th, 2021|Categories: Uncategorized|

Chris Ahern’s lab at the University of Iowa Carver College of Medicine studies the molecular function of ion channels and the basis for ion channel disorders. He received his BS in Chemistry and PhD in Physiology at UW-Madison where he was interested in the function of calcium ion channels in skeletal muscle. He then [...]

Jack Parent, MD

By |2021-11-17T12:51:35-05:00November 17th, 2021|Categories: Uncategorized|

Jack M. Parent, MD, is the William J. Herdman Professor of Neurology, Research Professor of the Michigan Neuroscience Institute and co-director of the Epilepsy Center at the University of Michigan. He is a past Secretary of the American Neurological Association, past Board member of the American Epilepsy Society and recently served as Chief Editor [...]

Scott Baraban, PhD

By |2021-11-15T12:33:22-05:00November 15th, 2021|Categories: Uncategorized|

Scott C. Baraban, PhD is a Professor of Neurological Surgery and William K. Bowes Jr. Endowed Chair in Neuroscience Research at the University of California, San Francisco. Dr. Baraban’s lab studies the cellular and molecular basis of epilepsy, specifically catastrophic epilepsies of childhood. Combining pharmacology, genetics, electrophysiology, cell transplantation, and unique zebrafish models they [...]

Lori Isom, PhD

By |2021-11-15T09:10:28-05:00November 15th, 2021|Categories: Uncategorized|

Dr. Isom is the Maurice H. Seevers Professor and Chair of the Department of Pharmacology, Professor of Molecular and Integrative Physiology, and Professor of Neurology at the University of Michigan Medical School. She has served as Director of the Program in Biomedical Sciences and Assistant Dean for Graduate Education in the University of Michigan [...]

Community Spotlight

By |2022-01-21T05:11:46-05:00November 15th, 2021|Categories: Our Community|

Meet The Odlaug, Nusslock and Brennan Families Community Spotlight, meet The Odlaug, Nusslock, and Brennan Families and join us in thanking and congratulating them on reaching their fundraising goal of $1 million for DSF! Andrew and Kimberly Odlaug blessed their family in September 2017 with the birth of Anna Grace. Anna was diagnosed [...]

Caregiver Connect

By |2021-11-12T14:25:41-05:00November 15th, 2021|Categories: DSF Programs|

Caregiver Connect In 2019 DSF launced Caregiver Connect – a multi-year collaboration between DSF and Greenwich Biosciences for caregivers and families. Caregiver Connect is a unique multi-faceted program with a focus on helping families manage the caregiver burden and stress that accompanies caring for a child with a rare epilepsy who has complex [...]


Go to Top