Call for Research Proposals

By |2021-06-17T11:20:04-05:00June 17th, 2021|Categories: Research / Treatments|

Applications Due September 10, 2021 The 2021 DSF Research Grant Program is open! Our Research Grant Program was established in 2010 to support investigator sponsored research in the field of Dravet syndrome, which historically has been critically underfunded. Our goal is to support and promote innovative approaches in Dravet syndrome research across disciplines [...]

An Update On Our Staff

By |2021-06-17T10:48:30-05:00June 17th, 2021|Categories: Our Community|

Thank You Wendy! Please join us in thanking Wendy Fry for her role as Director of Family and Caregiver Engagement for DSF. Wendy recently made the very difficult decision to step down from her role to focus on her family. Wendy is a former elementary school teacher living just north of Philadelphia, PA [...]

Follow Dan

By |2021-06-30T21:41:24-05:00June 11th, 2021|Categories: Uncategorized|

        #MilesforMcCall #RaceAcrossAmerica #CyclingforaCure #RideforResearchDravet #RidesforResearch Follow Dan's Training on Strava!

Qualifying Race Calendar

By |2021-08-17T16:27:38-05:00June 11th, 2021|Categories: Uncategorized|

Learn more about the 24 Hour World Time Trial Championship WTTC Fun Facts: Borrego Springs, CA - Located in Southern California Anza-Borrego Desert 60 metal sculptures by Ricardo Brecada 6, 12 & 24 Hour Race (Dan will be racing for 24) 95 Participants in 24 Hour Solo Race (77 Men & 18 Women representing 14 [...]

What is RAAM?

By |2021-06-11T14:31:26-05:00June 11th, 2021|Categories: Uncategorized|

Race Across America (RAAM) is one of the most respected and longest running ultra-endurance events in the world. RAAM is seen as a pinnacle of athletic achievement not only in cycling circles but the greater sporting community as well. In 1982, four individuals raced from the Santa Monica Pier in Los Angeles to the Empire [...]

Join us at our Dravet Discussion Lounges at this Year’s Conference!

By |2021-06-18T10:53:54-05:00June 11th, 2021|Categories: Decoding Dravet Blog|

With our conference in a virtual format this year, we wanted to find a creative way to see and chat with one another until we can meet again in person next year. We will be hosting our Dravet Discussion Lounges from 7-9pm ET on Friday, June 25th and Saturday, June 26th, for all registered conference [...]

Sparkling Grape Lemonade

By |2021-06-14T16:52:02-05:00June 10th, 2021|Categories: Uncategorized|

Sparkling Grape Lemonade (mocktail) 1 can 295mL Minute Maid® Grape Punch frozen concentrate, thawed (undiluted) 1 can 295mL Minute Maid® Lemonade frozen concentrate, thawed (undiluted) 3 cups Sprite® Sparkling Beverage 2 cups Water Mix concentrates, Sprite, and water in a large pitcher.  Serve over ice.   

Blackberry Mint Moscow Mule

By |2021-06-14T16:52:29-05:00June 10th, 2021|Categories: Uncategorized|

Blackberry Mint Moscow Mule (cocktail or mocktail) 2 14 oz. bottles of ginger beer 1 cup water 1 cup blackberries, plus more for garnish 1/2 cup mint leaves, plus more for garnish 2 limes, sliced, plus more for garnish For the simple syrup: 1/2 cup water 1/2 cup raw honey 2” piece fresh ginger, sliced To make the simple syrup, bring the [...]

Blackberry Mojito

By |2021-06-14T16:53:09-05:00June 10th, 2021|Categories: Uncategorized|

Blackberry Mojito (cocktail) 2-4 teaspoons sugar, or to taste 1 fresh lemon juice 1 fresh lime juice 1/2 cup seltzer water 1/4 cup vodka or rum 12 blackberries 12 large mint leaves 6 to 8 ice cubes Muddle blackberries, mint leaves, sugar, lemon juice, and lime juice in a tall glass.  Add seltzer, vodka/rum, and top with ice.  Stir and [...]

Water Lily

By |2021-06-14T16:53:24-05:00June 10th, 2021|Categories: Uncategorized|

Water Lily (cocktail) .75 oz dry gin (Gordons, Beefeater) .75 oz Crème de Violette .75 oz Cointreau .75 oz fresh lemon juice Shake all the ingredients over ice and strain into a chilled cocktail glass.

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