Join the Fight!

By |2021-04-08T17:26:54-05:00April 9th, 2021|Categories: Decoding Dravet Blog|

Get ready for 2021 Dravet Syndrome Awareness Month this June! We invite you to JOIN THE FIGHT and show your support through our t-shirt fundraiser on Custom Ink, which runs from today through April 30th. Orders are estimated to ship around May 18th to assure you have them in hand for Dravet Awareness Month. Shirts [...]

Guest Blog: Results from DSUK survey on the patient experience with COVID-19 vaccinations provides reassurance

By |2021-04-01T09:11:10-05:00April 2nd, 2021|Categories: Decoding Dravet Blog|

Our caregiver community has been anxious to learn about the experiences of patients with Dravet syndrome who have received the COVID-19 vaccination. Our friends at Dravet Syndrome UK (DSUK) recently surveyed their community to gather information on the patient experience after vaccination. They have been kind enough to share this with us in the [...]

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