November is recognized as National Epilepsy Awareness Month in the U.S. The Centers for Disease Control and Prevention (CDC) estimate that 3.4 million people in the U.S. are living with epilepsy. Many of those affected patients, such as those with Dravet syndrome, will have seizures throughout their life.

Epilepsy is one of the least understood of all the neurological diseases, yet it is the fourth most common (after migraine, stroke, and Alzheimer’s). One in 26 people will be diagnosed with epilepsy at some point during their lifetime. And one-third of those with epilepsy live with uncontrolled seizures because there are no available treatments or medications that work for them. 

National Epilepsy Awareness Month encourages awareness and gives you the opportunity to get involved through awareness, advocacy, and education. This is a great opportunity to help DSF educate the public and to fundraise to support research to help find better treatments and a cure. Ready to help?

    • Share your loved one’s story. Raising awareness is key. It helps assure early diagnosis, appropriate treatment, and community support. Visit our Patient Stories page to read other stories and add your own.
    • Educate by sharing. Be sure to follow DSF on Facebook, Twitter, Instagram, LinkedIn and YouTube. Share our posts and videos throughout the month to raise awareness of epilepsy, particularly Dravet syndrome.
    • Raise funds. You can start a Facebook fundraiser or your own personal campaign page to share with your family, friends, and community. Or join this year’s Dash for Dravet and start a team for more impact. Allow friends and family to participate in a meaningful way by donating in honor of your loved one. 
    • Wear your purple. Start a conversation by wearing awareness gear. DSF offers a variety of choices in our online store.
    • Talk about Seizure Safety. Make sure that others know how to recognize a seizure and how to help. The Epilepsy Foundation offers several tools on their website on seizure first aid that you can share.

You can make a difference. Knowledge and understanding will go a long way in helping those living with Dravet syndrome and other forms of epilepsy. Thank you for helping us raise awareness this November!