Agenda & Speakers

REGISTERED ATTENDEES:
You can watch recorded sessions on demand through September 30th at:

www.2021DSFConference.org  

Live presentations are in Eastern Standard Time.
(You may find this time zone converter useful.)

Speakers and presentation times are subject to change.

Thu, June 24 Speaker Topic
6:00pm-7:30pm Laurie Bailey & Carla Schad, MD Sibling Survey Update
Sibling Stories and Q&A with Sib Panel
Fri, June 25 Speaker Topic
11:45am-12:00pm Welcome
12:00pm-12:45pm Prof Ingrid Scheffer An Introduction to Dravet Syndrome
12:45pm-1:30pm Elaine Wirrell, MD &
David Burkholder, MD
Transition to Adult Care for Patients with Dravet Syndrome
1:30pm-2:00pm Danielle Andrade, MD Dravet Syndrome in Adults
2:00pm-2:15pm Break
2:15pm-2:45pm M. Scott Perry, MD What’s New in Dravet Treatment?
2:45pm-3:15pm Kelly Knupp, MD Seizures Need Action
3:15pm-3:45pm Linda Laux, MD Gene Therapies in Dravet Syndrome
3:45pm-4:15pm Ian Miller, MD SUDEP: An Overview
4:15pm-4:45pm Mark Jensen, PhD &
Dagmar Amtmann, PhD
Fenfluramine and Quality of Life of Patients with
Dravet Syndrome and Their Families: A Qualitative
Analysis
4:45pm-5:15pm Rejena Azad, PharmD Living with Seizure Clusters: How a Rescue Medication May be Able to Help
5:15pm-5:30pm Closing Remarks
5:30pm-5:50pm Encoded Industry Q&A – learn about our industry partners and what they are working on
5:50pm-6:10pm Longboard Pharmaceuticals Industry Q&A – learn about our industry partners and what they are working on
6:10pm-6:30pm Greenwich – Unspoken Symphony Industry Q&A – learn about our industry partners and what they are working on
7:00pm-9:00pm Dravet Discussion Lounges – Join us for a virtual happy hour to catch up with old friends and meet new ones!
Sat, June 26 Speaker Topic
11:45am-12:00pm Welcome
12:00pm-12:30pm Heather Mefford, PhD Genetics of Dravet Syndrome
12:30pm-1:00pm Ethan Goldberg, MD, PhD Basic Science of Dravet Syndrome: Towards future therapies and cure
1:00pm-1:30pm Jennifer Kearney, PhD Modeling Dravet Syndrome in Mice
1:30pm-2:00pm Scott Baraban, PhD From Zebrafish to Sea Lions: Our Journey to New Therapy Development (***session will only be available live and will not be recorded)
2:00pm-2:30m Jack Parent, MD Human Stem Cell Models of Epilepsy
2:30pm-2:45m Break
2:45pm-3:15pm Manisha Patel, PhD Metabolic Dysfunction in a Zebrafish Model of Dravet Syndrome
3:15pm-3:45pm Lori Isom, PhD Dancing to a Different Tune: TANGO Gives Hope for Dravet Syndrome
3:45pm-4:15pm Miriam Meisler, PhD Targeting SCN8A
4:15pm-4:45pm Dennis Dlugos, MD, MSCE Dravet Syndrome Clinical Trial Update
4:45pm-5:00pm Closing Remarks
5:00pm-5:20pm Biocodex Industry Q&A – learn about our industry partners and what they are working on
7:00pm-9:00pm Dravet Discussion Lounges – Join us for a virtual happy hour to catch up with old friends and meet new ones!