Agenda & Speakers

Live presentations are in Eastern Standard Time.
(You may find this time zone converter useful.)

Speakers and presentation times are subject to change.

Thu, June 24 Speaker Topic
6:00pm-7:30pm Laurie Bailey Sibling Survey Update
Sibling Stories and Q&A with Sib Panel
Fri, June 25 Speaker Topic
11:45pm-12:00pm Welcome
12:00pm-12:45pm Prof Ingrid Scheffer An Introduction to Dravet Syndrome
12:45pm-1:30pm Elaine Wirrell, MD &
David Burkholder, MD
Transition to Adult Care
1:30pm-2:00pm Danielle Andrade, MD Dravet Syndrome in Adults
2:00pm-2:15pm Break
2:15pm-2:45pm M. Scott Perry, MD What’s New in Dravet Treatment?
2:45pm-3:15pm Kelly Knupp, MD Seizure Action Plans & New Emergency Medications
3:15pm-3:45pm Linda Laux, MD Gene Therapies in Dravet Syndrome
3:45pm-4:15pm Ian Miller, MD SUDEP
4:15pm-4:45pm Mark Jensen, PhD &
Dagmar Amtmann, PhD
Fenfluramine and Quality of Life of Patients with
Dravet Syndrome and Their Families: A Qualitative
Analysis
4:45pm-5:00pm Closing Remarks
7:00pm-9:00pm Virtual Lounges for Attendees – catch up with old friends and meet new!
Sat, June 26 Speaker Topic
11:45am-12:00pm Welcome
12:00pm-12:30pm Heather Mefford, PhD Genetics of Dravet Syndrome
12:30pm-1:00pm Ethan Goldberg, MD, PhD Neuronal Communication
1:00pm-1:30pm Jennifer Kearney, PhD Modeling Dravet Syndrome in Mice
1:30pm-2:00pm Scott Baraban, PhD From Zebrafish to Sea Lions: Our Journey to New Therapy Development
2:00pm-2:30m Jack Parent, MD Organoids
2:30pm-2:45m Break
2:45pm-3:15pm Manisha Patel, PhD Metabolism
3:15pm-3:45pm Lori Isom, PhD TANGO
3:45pm-4:15pm Miriam Meisler, PhD Targeting SCN8A
4:15pm-4:45pm Dennis Dlugos, MD, MSCE Clinical Trials
4:45pm-5:00pm Closing Remarks
7:00pm-9:00pm Virtual Lounges for Attendees – catch up with old friends and meet new!