Agenda & Speakers

REGISTERED ATTENDEES:
You can watch recorded sessions on demand through September 30th at:

www.2021DSFConference.org  

Live presentations are in Eastern Standard Time.
(You may find this time zone converter useful.)

Speakers and presentation times are subject to change.

Thu, June 24SpeakerTopic
6:00pm-7:30pmLaurie Bailey & Carla Schad, MDSibling Survey Update
Sibling Stories and Q&A with Sib Panel
Fri, June 25SpeakerTopic
11:45am-12:00pmWelcome
12:00pm-12:45pmProf Ingrid SchefferAn Introduction to Dravet Syndrome
12:45pm-1:30pmElaine Wirrell, MD &
David Burkholder, MD
Transition to Adult Care for Patients with Dravet Syndrome
1:30pm-2:00pmDanielle Andrade, MDDravet Syndrome in Adults
2:00pm-2:15pmBreak
2:15pm-2:45pmM. Scott Perry, MDWhat’s New in Dravet Treatment?
2:45pm-3:15pmKelly Knupp, MDSeizures Need Action
3:15pm-3:45pmLinda Laux, MDGene Therapies in Dravet Syndrome
3:45pm-4:15pmIan Miller, MDSUDEP: An Overview
4:15pm-4:45pmMark Jensen, PhD &
Dagmar Amtmann, PhD
Fenfluramine and Quality of Life of Patients with
Dravet Syndrome and Their Families: A Qualitative
Analysis
4:45pm-5:15pmBrandi Fannon, PharmDLiving with Seizure Clusters: How a Rescue Medication May be Able to Help
5:15pm-5:30pmClosing Remarks
5:30pm-5:50pmEncodedIndustry Q&A – learn about our industry partners and what they are working on
5:50pm-6:10pmLongboard PharmaceuticalsIndustry Q&A – learn about our industry partners and what they are working on
6:10pm-6:30pmGreenwich – Unspoken SymphonyIndustry Q&A – learn about our industry partners and what they are working on
7:00pm-9:00pmDravet Discussion Lounges – Join us for a virtual happy hour to catch up with old friends and meet new ones!
Sat, June 26SpeakerTopic
11:45am-12:00pmWelcome
12:00pm-12:30pmHeather Mefford, PhDGenetics of Dravet Syndrome
12:30pm-1:00pmEthan Goldberg, MD, PhDBasic Science of Dravet Syndrome: Towards future therapies and cure
1:00pm-1:30pmJennifer Kearney, PhDModeling Dravet Syndrome in Mice
1:30pm-2:00pmScott Baraban, PhDFrom Zebrafish to Sea Lions: Our Journey to New Therapy Development (***session will only be available live and will not be recorded)
2:00pm-2:30mJack Parent, MDHuman Stem Cell Models of Epilepsy
2:30pm-2:45mBreak
2:45pm-3:15pmManisha Patel, PhDMetabolic Dysfunction in a Zebrafish Model of Dravet Syndrome
3:15pm-3:45pmLori Isom, PhDDancing to a Different Tune: TANGO Gives Hope for Dravet Syndrome
3:45pm-4:15pmMiriam Meisler, PhDTargeting SCN8A
4:15pm-4:45pmDennis Dlugos, MD, MSCEDravet Syndrome Clinical Trial Update
4:45pm-5:00pmClosing Remarks
5:00pm-5:20pmBiocodexIndustry Q&A – learn about our industry partners and what they are working on
7:00pm-9:00pmDravet Discussion Lounges – Join us for a virtual happy hour to catch up with old friends and meet new ones!