PAME 2020: A Parent’s Perspective

By |2020-12-23T09:07:23-05:00December 18th, 2020|Categories: Decoding Dravet Blog|

 SUDEP and mortality in epilepsy are important but scary topics for the Dravet syndrome community. It is important for our patient families to be informed on new research and updated guidelines to keep their loved ones safe. Every two years, Partners Against Mortality in Epilepsy (PAME) hosts a meeting to improve the understanding of, and [...]

AES Meeting Summary

By |2020-12-15T11:55:33-05:00December 15th, 2020|Categories: Research / Treatments|

AES 2020 Meeting Summary On December 4-8th, 2020, the American Epilepsy Society (AES) held its annual conference to bring together clinicians and scientists on the cutting edge of epilepsy research. This year had a multitude of presentations related to Dravet syndrome, making for an exciting few days focused on what we have learned [...]

2020 Grant Awards

By |2021-03-15T10:52:53-05:00December 15th, 2020|Categories: Research / Treatments|

2020 DSF Grant Awardees DSF is dedicated to funding the highest caliber research on Dravet syndrome and associated epilepsies. Our focus is on research projects that will find new treatments and improve the quality of life for those living with an ion channel epilepsy. We place a high priority on funding research that [...]

#MemberMonday Spotlight

By |2020-12-15T12:16:25-05:00December 15th, 2020|Categories: Our Community|

Meet Rykers Rally! This #MemberMonday meet Rykers Rally! Ryker was diagnosed with Dravet syndrome when he was 8 months old. It was a bittersweet moment for his parents, Erika and Ryan. Although they finally had a diagnosis, they were overwhelmed as they learned more and more about his diagnosis. Erika says, "I've often [...]

2020 Annual Campaign

By |2020-12-15T11:36:05-05:00December 15th, 2020|Categories: Events|

2020 Annual Campaign We hope you will join us as a supporter at DSF’s Annual Campaign and help us achieve our fundraising goal of $100,000. There are 2 easy ways you can give today: Online at www.dsfannualcampaign.org By mail, to DSF, PO Box 3026, Cherry Hill, NJ 08034 Please know that our community [...]

Research Roundtable

By |2020-12-15T11:53:38-05:00December 15th, 2020|Categories: DSF Programs|

11th Annual Research Roundtable The Dravet Syndrome Foundation was honored to host our 11th annual Research Roundtable on December 3rd, 2020, the evening prior to the annual American Epilepsy Society (AES) Meeting. Given the current COVID-19 pandemic, the events were held virtually this year. Despite the limitation of not being ablt to meet [...]

DSF Announces 2020 Grant Recipients

By |2021-02-24T17:20:06-05:00December 4th, 2020|Categories: Decoding Dravet Blog|

The Dravet Syndrome Foundation (DSF) announced the 2020 grant awardees last night at the 11th annual Research Roundtable. DSF is excited to be funding two 2-year research grants and an additional 1-year postdoctoral fellowship. Following this year’s awards, DSF’s total contribution to research projects will be nearly $5 million. The first of the 2-year grants [...]

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