Even though I believe all of us are ready to bid goodbye to 2020 and move onto 2021, I wanted to take the time to reflect on and highlight some of the positive things that happened this year. Below is my recap of what DSF has accomplished in 2020, as well as other exciting advances [...]
SUDEP and mortality in epilepsy are important but scary topics for the Dravet syndrome community. It is important for our patient families to be informed on new research and updated guidelines to keep their loved ones safe. Every two years, Partners Against Mortality in Epilepsy (PAME) hosts a meeting to improve the understanding of, and [...]
11th Annual Research Roundtable The Dravet Syndrome Foundation was honored to host our 11th annual Research Roundtable on December 3rd, 2020, the evening prior to the annual American Epilepsy Society (AES) Meeting. Given the current COVID-19 pandemic, the events were held virtually this year. Despite the limitation of not being ablt to meet [...]
2020 Annual Campaign We hope you will join us as a supporter at DSF’s Annual Campaign and help us achieve our fundraising goal of $100,000. There are 2 easy ways you can give today: Online at www.dsfannualcampaign.org By mail, to DSF, PO Box 3026, Cherry Hill, NJ 08034 Please know that our community [...]
Meet Rykers Rally! This #MemberMonday meet Rykers Rally! Ryker was diagnosed with Dravet syndrome when he was 8 months old. It was a bittersweet moment for his parents, Erika and Ryan. Although they finally had a diagnosis, they were overwhelmed as they learned more and more about his diagnosis. Erika says, "I've often [...]
2020 DSF Grant Awardees DSF is dedicated to funding the highest caliber research on Dravet syndrome and associated epilepsies. Our focus is on research projects that will find new treatments and improve the quality of life for those living with an ion channel epilepsy. We place a high priority on funding research that [...]
AES 2020 Meeting Summary On December 4-8th, 2020, the American Epilepsy Society (AES) held its annual conference to bring together clinicians and scientists on the cutting edge of epilepsy research. This year had a multitude of presentations related to Dravet syndrome, making for an exciting few days focused on what we have learned [...]
Today’s blog post is a review of some of the topics relevant to Dravet syndrome that were presented at the annual American Epilepsy Society (AES) meeting. This was my first year attending the AES meeting and also the first year the meeting was held virtually. I learned so much and was excited by the amount [...]
The Dravet Syndrome Foundation (DSF) announced the 2020 grant awardees last night at the 11th annual Research Roundtable. DSF is excited to be funding two 2-year research grants and an additional 1-year postdoctoral fellowship. Following this year’s awards, DSF’s total contribution to research projects will be nearly $5 million. The first of the 2-year grants [...]
