Upcoming EL-PFDD Meeting February 3rd!
Upcoming EL-PFDD Meeting February 3rd!
We are just a few days away from June 1st, which is the start of Dravet Syndrome Awareness Month. We also celebrate international Dravet Syndrome Awareness Day on June 23rd. This year, we hope you will join DSF in spreading one simple message: CURE DRAVET! There are multiple ways you can help to spread the [...]
Mark your calendars and join DSF on July 24th to Party in your PJs for Dravet! DSF is hosting this virtual interactive pajama party again this year and YOU are on our guest list! This is a party you don't want to miss! Join us for an evening of entertainment from your living room. There [...]
Virtual Meet-Ups DSF Virtual Meet-Ups are a chance for meeting up face-to-face with one another to chat about what is on our minds and meet new people. The meet-ups are interactive discussions rather than a presentation. They are a great way to spend some time with other Dravet parents from the safety of your own [...]
Applications Due September 4, 2020 The 2020 DSF Research Grant Program is open! Our Research Grant Program was established in 2010 to support investigator sponsored research in the field of Dravet syndrome, which historically has been critically underfunded. Our goal is to support and promote innovative approaches in Dravet syndrome research across disciplines [...]
Zogenix Offers New Website Shine Forward With Dravet is brought to you by Zogenix, Inc. Shine Forward With Dravet is a website dedicated to sharing resources and inspiration for families living with Dravet syndrome. Whether you are a parent, sibling, friend, or other family member of someone with Dravet syndrome, Shine Forward With [...]
#CUREDRAVET June is Dravet Syndrome Awareness month and June 23rd is International Dravet Syndrome Awareness Day. We encourage you each to start thinking ahead about some of the ways you can help DSF’s efforts this June to spread the word about Dravet syndrome and the needs of our community. DRAVET AWARENESS T-SHIRT CAMPAIGN Thank [...]
The 2020 DSF Research Grant Program is open! Our Research Grant Program was established in 2010 to support investigator sponsored research in the field of Dravet syndrome, which historically has been critically underfunded. Our goal is to support and promote innovative approaches in Dravet syndrome research across disciplines to meet the critically important needs in [...]
In previous research reviews we have talked about “Dravet mice” – usually that means mice which have been engineered to carry a deletion of one copy of the Scn1a gene. These mice exhibit the key features of Dravet syndrome, including febrile and spontaneous seizures, SUDEP, and cognitive and behavioral deficits. But these mice display varying [...]
Each May, DSF launches a t-shirt campaign prior to the start of Dravet Syndrome Awareness Month and Awareness Day in June. This year, we hope you'll join us in spreading one simple message: #CUREDRAVET! You can order through our online campaign and select from apparel in a variety of styles and sizes for adults and [...]
Join us and our VIP expert guests starting May 7th DSF is hosting an educational webinar series weekly beginning May 7th. Register to join any of our sessions live or check back on this page for the recorded version of each session. The series features some of the sessions from our 2020 conference agenda. It also [...]
