June is Dravet Syndrome Awareness Month

By |2020-05-27T15:55:50-05:00May 29th, 2020|Categories: Decoding Dravet Blog|

We are just a few days away from June 1st, which is the start of Dravet Syndrome Awareness Month. We also celebrate international Dravet Syndrome Awareness Day on June 23rd. This year, we hope you will join DSF in spreading one simple message: CURE DRAVET! There are multiple ways you can help to spread the [...]

June is Awareness Month

By |2020-05-14T16:39:02-05:00May 15th, 2020|Categories: Events|

#CUREDRAVET June is Dravet Syndrome Awareness month and June 23rd is International Dravet Syndrome Awareness Day. We encourage you each to start thinking ahead about some of the ways you can help DSF’s efforts this June to spread the word about Dravet syndrome and the needs of our community. DRAVET AWARENESS T-SHIRT CAMPAIGN Thank [...]

Shine Forward With Dravet

By |2020-05-14T11:18:20-05:00May 15th, 2020|Categories: Our Community|

Zogenix Offers New Website Shine Forward With Dravet is brought to you by Zogenix, Inc. Shine Forward With Dravet is a website dedicated to sharing resources and inspiration for families living with Dravet syndrome. Whether you are a parent, sibling, friend, or other family member of someone with Dravet syndrome, Shine Forward With [...]

Call for Research Proposals

By |2020-05-14T11:18:32-05:00May 15th, 2020|Categories: Research / Treatments|

Applications Due September 4, 2020 The 2020 DSF Research Grant Program is open! Our Research Grant Program was established in 2010 to support investigator sponsored research in the field of Dravet syndrome, which historically has been critically underfunded. Our goal is to support and promote innovative approaches in Dravet syndrome research across disciplines [...]

Join Our Virtual Meet-Ups

By |2020-05-14T11:18:07-05:00May 15th, 2020|Categories: DSF Programs|

Virtual Meet-Ups DSF Virtual Meet-Ups are a chance for meeting up face-to-face with one another to chat about what is on our minds and meet new people. The meet-ups are interactive discussions rather than a presentation. They are a great way to spend some time with other Dravet parents from the safety of your own [...]

Call for Research Proposals!

By |2020-05-14T12:07:09-05:00May 15th, 2020|Categories: Decoding Dravet Blog|

The 2020 DSF Research Grant Program is open! Our Research Grant Program was established in 2010 to support investigator sponsored research in the field of Dravet syndrome, which historically has been critically underfunded. Our goal is to support and promote innovative approaches in Dravet syndrome research across disciplines to meet the critically important needs in [...]

GABRA2 is a genetic modifier of Dravet syndrome in mice

By |2020-05-12T21:51:07-05:00May 12th, 2020|Categories: DSF Research Review|Tags: , , |

In previous research reviews we have talked about “Dravet mice” – usually  that means mice which have been engineered to carry a deletion of one copy of the Scn1a gene. These mice exhibit the key features of Dravet syndrome, including febrile and spontaneous seizures, SUDEP, and cognitive and behavioral deficits. But these mice display varying [...]

2020 DSF Awareness T-Shirt Campaign

By |2020-05-04T19:16:53-05:00May 8th, 2020|Categories: Decoding Dravet Blog|

Each May, DSF launches a t-shirt campaign prior to the start of Dravet Syndrome Awareness Month and Awareness Day in June. This year, we hope you'll join us in spreading one simple message: #CUREDRAVET! You can order through our online campaign and select from apparel in a variety of styles and sizes for adults and [...]

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