Since 2009, DSF Steps Toward a Cure walks have gathered the Dravet community to unify our voices, increase awareness about Dravet syndrome and generate support for those who suffer from its potentially devastating challenges. Funds raised at these events have helped DSF to fund over $4.6M in research and over $160K in Patient Assistance Grants over the years. Due to COVID-19, this year we are changing our live walks to a single week-long virtual event, with activities and prizes to celebrate the Dravet community while still supporting the important programs of DSF. A virtual walk is a real walk, just on your terms: you get to choose your own course and length, what time you start, and who walks next to you. We hope you will join us on this new and exciting journey!
Register now and participate on your own terms by raising money and awareness whenever it’s best for you, then take your Steps Toward a Cure anytime between Saturday, September 19th and Saturday, September 26th. You can walk or run 1 mile, a 5K, or a marathon anywhere – the choice is yours! You can even start a team so that family, friends, colleagues, and health care providers can join your team. It’s a fun way for everyone to get involved without worrying about a scheduled event. You are each a crucial part of a community that tackles the biggest challenges and health threats facing the Dravet syndrome community. Here is your chance to join others who care about improving the outcome for patients and families living with Dravet syndrome.
You don’t need to report your final time or distance to us! This event is meant to inspire us all, not stress anyone out with logistics. We want you to have the opportunity to be a part of something bigger than yourself, and to be proud of yourself for participating.
Please join us and help us meet our fundraising goal. And be sure to share the event with your family and friends via email or social media. The more funds we raise, the more research and support we can fund!
EVERYTHING YOU NEED TO KNOW TO JOIN IN ON THE FUN:
September 19 to September 26, 2020.
Walk wherever you would like for as long as you like!
All registered participants receive their own fundraising page and our first 200 participants are guaranteed to receive our official 2020 DSF Steps Toward a Cure Walk t-shirt! Children or adults with Dravet syndrome can register for free (with a paying adult) to also receive a walk t-shirt.
Start a team
Invite family and friends to register and join your team. The top fundraising team members will receive a special surprise!
Create a personal fundraising page and win AWESOME incentive prizes!
Run, walk or stroll through your neighborhood or on a treadmill. Do it all in one day or break it up throughout the week.
Join the virtual party with DJ John (from our Pajama Party!) on Saturday, September 26, 2020.