PAME – Even a Pandemic Can’t Stop the Quest
Monday, December 7, 2020 2:30 pm – 4:30 pm Eastern
Partners Against Mortality in Epilepsy (PAME) is a collaboration among health care providers, clinical researchers, basic scientists, public health officials, patient advocates, caregivers, bereaved families, and people living with epilepsy. This range of stakeholders come together with a common goal of improving our understanding of and working to prevent epilepsy-related forms of mortality, including suicide, accidents, and status epilepticus and with a strong focus on Sudden Unexpected Death in Epilepsy (SUDEP).
Since 2012, PAME has convened four powerful international meetings that have advanced research, education and clinical care, while supporting and learning from affected families.
This year the PAME meeting is going virtual.
This two-hour virtual PAME session will feature a story of life and loss from Victor and Libby Boyce, updates on new research and advocacy recommendations, and a review of Vital Topics in Epilepsy Mortality:
• Insights into all-cause mortality – Elizabeth Donner, MD, MSc, FRCPC
• Epilepsy-related mortality risk: Another example of health disparity due to socioeconomic status – Daniel Friedman, MD
• Why is SUDEP more common at night? Role of sleep – Torbjörn Tomson, MD, PhD and Kristina Simeone, PhD
• Is seizure-induced apnea a SUDEP biomarker? – Nuria Lacuey, MD, PhD and George Richerson, MD, PhD
The session will be live streamed this year, allowing families and advocates who do not attend the full AES2020 conference to view PAME at no cost. Submit your name and email address to receive instructions about how to watch.