Super Siblings Camp

We will offer a daily camp for siblings during the conference at our flagship hotel, the Renaissance Worthington. There will also be an onsite activity room at the Renaissance Worthington for children and adults with Dravet syndrome and their caregivers. No childcare will be provided in that room, so a caregiver must be present with the Dravet patient at all times. Please remember, no children are allowed in conference sessions at the hospital, as sessions are being recorded.

The camp program is only available for siblings of a child with Dravet syndrome, whose parent(s) are registered to attend the conference. Children must be at least 4 years old and potty-trained to attend. Siblings 16+ can volunteer to participate as a team leader for the camp. The cost for camp includes all activities, as well as breakfast, lunch and snacks. Camp coincides with conference sessions each day.

The program has a limited number of spaces available and is filled on a first-come basis. Approximately two months before the conference, you will receive a packet via email with a Camper Form for you to complete for your child’s participation in camp. You can register your child for Super Siblings Camp on the Conference Registration page. The cost is $50 per camper. If this is cost-prohibitive for you, please email Jenny. We have a limited number of Camp Scholarships available and want to make sure that every sibling has an opportunity to attend.

Onsite activities and offsite field trips are planned for participants. If you do not want your child to participate in offsite activities, you will need to arrange for separate childcare for your child during that time.

Continental breakfast, lunch and snacks are included in the price of the camp. Special dietary needs should be noted below on the registration form. We will do our best to accommodate these requests, but parents may need to provide meals if dietary needs are outside of our capabilities.

All medications must be brought in and administered by a parent. Certain medications that the child takes him- or herself (i.e., asthma inhalers, insulin testing, etc.) will be handled on a case by case basis after discussion with camp staff and the parent, prior to the start of camp.

You can direct any specific questions on the program to Jenny.

Camp Agenda (subject to change)

Fri, June 19 Children 10 & Under Children 11+
8:00am-8:30am Camper drop off Camper drop off
8:30am-9:00am Breakfast Breakfast
9:00am-6:00pm TBA TBA
6:00-6:30pm Camper pick-up Camper pick-up
Sat, June 20 Children 10 & Under Children 11+
8:00am-8:30am Camper drop off Camper drop off
8:30am-9:00am Breakfast Breakfast
9:00am-6:00pm TBA TBA
6:00pm-6:30pm Camper pick up Camper pick up