The Dravet Patients & Caregivers Room is a complimentary activity room for patients with Dravet syndrome and their caregivers. It will be located at our flagship hotel, the Renaissance Worthington, during the same hours as conference sessions. No nursing staff or aides are available in the Dravet Patients & Caregivers Room, so patients must be accompanied at all times by their own caregiver.
Sponsored by Ciara’s Light Foundation
the program will be developed and overseen by Ciara’s mom, Lori O’Driscoll, who also ran the room at our 2018 event. Watch this page for updates on activities!