Super Siblings Camp

We will offer a daily camp for siblings during the conference at the Hyatt Regency Aurora-Denver, our flagship hotel for the conference.  There will also be an onsite activity room at the Hyatt available for children with Dravet syndrome and their caregivers. No childcare will be provided in that room, so a caregiver must be present with the Dravet child at all times. Please remember, no children are allowed in conference sessions at the hospital.

The camp program is only available for siblings of a child with Dravet syndrome, whose parent(s) are registered to attend the conference. Children must be at least 4 years old and potty-trained to attend. Siblings 16+ can volunteer to participate as a team leader for the camp. The cost for camp includes all activities, as well as breakfast, lunch and snacks.

Drop off for camp will be at the Hyatt from 8:00am-9:00am on Friday and Saturday. On Sunday camp drop off will take place after the Wings of Hope butterfly release at Colorado Children’s Hospital. Pick up from camp runs from 6:00-6:30 on Friday and Saturday and from 12:00-12:30 on Sunday. These times coincide with the end of conference sessions each day.

The program has a limited number of spaces available and is filled on a first-come basis. Registration will open in early March. Approximately a month before the conference, you will receive a packet via email with a Camper Form for you to complete for your child’s participation in camp.

You can sign your child up for Super Sibling Camp, when completing your registration on the Conference Registration page.

You can direct any questions on the program to Mary Anne.

Camp Agenda

Friday, July 20 Children 10 & Under Children 11+
8:00am-8:30am Camper drop off Camper drop off
8:30am-9:00am Breakfast Breakfast
9:00am-12:00pm On site activities On site activities
12:00pm-2:00pm Lunch at General’s Park Lunch at General’s Park
2:00pm-3:00pm Snack & Craft Snack & Craft
3:00pm-6:00pm Sib Sessions (sponsored by Zogenix) Sib Sessions (sponsored by Zogenix)
6:00-6:30pm Camper pick-up Camper pick-up
Saturday, July 22nd Children 10 & Under Children 11+
8:00am-8:30am Camper drop off Camper drop off
8:30am-9:15am Breakfast Breakfast
9:15am-10:00am Shuttle bus to Zoo Shuttle bus to Craftsman & Apprentice
10:00am-12:30pm Zoo Craftsman & Apprentice
12:30pm-1:00pm Lunch Shuttle bus to Denver Park
1:00pm-1:30pm Shuttle bus to Craftsman & Apprentice Lunch
1:30pm-3:30pm Craftsman & Apprentice Denver Science Museum
3:30pm-4:00pm Shuttle bus back to hotel Shuttle bus back to hotel
4:00pm-6:00pm Ice cream sundae bar & T-shirt making Ice cream sundae bar & T-shirt making
6:00pm-6:30pm Camper pick up Camper pick up
Sunday, July 23rd Children 10 & Under Children 11+
8:00am-8:30am Camper drop off (Wings of Hope/Children’s Hospital) Camper drop off (Wings of Hope/Children’s Hospital)
8:30am-9:30am Wings of Hope butterfly release Wings of Hope butterfly release
9:30am-10:00am Breakfast Breakfast
10:00am-12:00pm Swimming & games (Hyatt) Swimming & games (Hyatt)
12:00pm-12:30pm Camper pick up Camper pick up