FAQ & Travel Tips

 Here are some suggestions to make your trip less stressful:

    • Download our “Know Before You Go” guide for answers to all of your conference questions.
    • If you are staying at the flagship hotel, sign up for the World of Hyatt Loyalty Program. Earn points for your hotel stay, as well as member perks. More details here.
    • Download the free DSF Conference app. It is now available in Google Play and iTunes. Search for “DSF Conference”.
    • Make sure you have your current health insurance card/information in case of any medical emergencies. Review your policy regarding emergency care when traveling. Bring a hard copy of your Seizure Action Plan.
    • Place medications in your carry on bag and make sure to bring an extra week’s worth to be safe.
    • Pack sunscreen and cooling vests.


How often and where is the conference held?

DSF hosts its Family & Professional Conference every 2 years. The location changes from region to region across the U.S. Our last conference was held in 2016 in Miami. The location for our 2020 event has not been selected yet, but will be announced in early 2019.  


Is onsite registration available?

Onsite registration IS NOT available. All attendees must register for the event by Friday, July 13th. 


What is included in my registration fee?

A 3-day family registration fee includes admission to all sessions, breakfast and lunch each day and the Thursday evening cocktail reception. Thanks to the generosity of our sponsors, all family members and caregivers in attendance are also invited to our family events on Friday and Saturday evening. 1-day registration fees include breakfast, lunch and any social activities for that day only.


What is the cancellation policy?

Cancellation requests must be submitted in writing to maryanne@dravetfoundation.org. Cancellation requests received on or before June 22nd are refundable, subject to a $50 administrative fee.

Cancellation requests received after June 22nd, are nonrefundable. Exceptions may be made for family emergencies and must be submitted in writing to maryanne@dravetfoundation.org.

No-shows at the 2018 Family & Professional Conference are not eligible for a refund.

If you cancel and are entitled to a refund, you can expect the refund within 30 days. All refunds will be issued back to the original payment type.


Is conference pass sharing allowed?

We will once again offer conference pass sharing for families. Two parents or a parent and caregiver may share one conference registration if they are taking turns caring for a Dravet child onsite. Only one person per pass will be permitted in sessions at any one time. You must fill out the name of the 2nd person who is sharing your pass at the time of registration.


Are scholarships available?

We are excited to announce that DSF has received funding from Greenwich Biosciences for a scholarship program to assist individuals and/or families to attend the 3rd Biennial DSF Family & Professional Conference in Aurora, Colorado. A limited number of scholarships are available. The family scholarship program will open on March 12th and will close on Friday, April 13th. Applicants will be contacted in May as to whether or not their application has been approved. More details at this link.


Are children allowed in the conference sessions?

Children are not be permitted in sessions at any time at the hospital.


Is there childcare available?

Activity rooms will be available for children and adults with Dravet syndrome at no cost, but they must have a caregiver in attendance with them at all times. No nursing staff or aides will be provided, so please plan accordingly for your child’s care.

We will once again offer our Sibling Day Camp for a small fee, for children 4-17 years old. Siblings will have the opportunity to connect with one another while doing onsite and offsite activities with volunteer staff. Breakfast and lunch are included with their registration.


What is the dress code?

While there is no set dress code, we suggest business casual for the sessions. 


What is the closest hospital?

Children’s Hospital Colorado, which is where our sessions will be held. It offers 24 hour ER services and many of the staff are familiar with Dravet syndrome.

Children’s Hospital Colorado
13123 E 16th Avenue
Aurora, CO 80045


Additional questions, not covered here?

Email Mary Anne