June is Awareness Month


June is Dravet Syndrome Awareness month and June 23rd is International Dravet Syndrome Awareness Day.

We encourage you each to start thinking ahead about some of the ways you can help DSF’s efforts this June to spread the word about Dravet syndrome and the needs of our community.

    Thank you to those who supported our annual Dravet Awareness t-shirt campaign. Orders will arrive shortly. We hope you will share your photos with us on social media of you supporting your #CUREDRAVET apparel. Photos can be emailed to Mary Anne.
    Facebook fundraisers have made it easy to raise funds and awareness. In 2019, over $100,000 was raised by our community members through Facebook Fundraising Pages. Consider starting your own page in June and tell your loved ones story to raise awareness as well as funds. Contact Misty with any questions on how to start.
    Throughout the month of June, DSF will be sharing posts about DS on all of our social media channels. We encourage you to share these posts or consider telling your own story about living with DS.

As you know, DSF is a passionate group of parents, supporters, medical professionals, and researchers who are working tirelessly to push science forward and create a better life for those living with Dravet syndrome. We cannot thank each of you enough for your ongoing support and the role you play in our success. Because of you, we continue to raise awareness, support research, and advocate for our patient community. Your generosity will help to create a better life for those living with Dravet syndrome.

By |2020-05-14T16:39:02-05:00May 15th, 2020|Categories: Events|
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