From 2010-2015 the Spirit of Hope award was presented annually to volunteers at DSF’s annual gala, Ciara’s Butterfly Bash. It recognized parents, siblings, and volunteers whose dedication through service to DSF is truly outstanding and inspiring.
Ciara’s Butterfly Bash was named in honor of DSF Founder Lori O’Driscoll’s daughter, Ciara O’Driscoll. In January, 2017, Ciara passed away from SUDEP (Sudden Unexplained Death in Epilepsy). In her memory, DSF began presenting an annual Ciara’s Spirit of Hope award to community members starting in 2018. We recognize that all of our parents, siblings, and families are heroes every day, but we want to acknowledge those who go above and beyond and who have made a significant contribution for the Dravet community through their work with DSF.
You can nominate a deserving community member today and our 2020 awardee will be announced live on Saturday, June 20, at our biennial conference in Fort Worth, Texas. And, please take the time to read Ciara’s Story and learn more about Ciara’s Light Foundation.