The Emotional Toll of Having an Ill Child: 6 Myths About PTSD

By |2020-03-10T14:17:23-05:00November 8th, 2019|Categories: Decoding Dravet Blog|

This week's guest blog post comes from Katie Holcomb. Katie is the Manager of PTSD and Coping Initiatives for Ryan’s Case for Smiles, a non-profit dedicated to helping children and their families cope with life changing illnesses and injuries today, while building resilience for the future. In short, to feel better to heal better. She [...]

Jackson’s Song

By |2020-04-06T13:39:56-05:00November 1st, 2019|Categories: Decoding Dravet Blog|

Today kicks off Epilepsy Awareness Month and we are excited to start it by sharing Jackson’s Song with our community! Jackson’s Song was written and recorded by Nashville Artist Sami Lin in honor of Jackson Aaron and his family and their day to day struggles of living with Dravet syndrome. Jackson’s parents (Jeff and Karina) [...]