The Importance of Natural History Studies

By |2020-04-06T16:14:04-05:00July 12th, 2019|Categories: Decoding Dravet Blog|

As a parent of a 19 year old son with Dravet syndrome, I recognize that the idea of giving up your time to participate in any type of research may sound overwhelming or next to impossible. Your days are already packed from morning to night with the constant care of your child, including therapies, medical [...]

Learn about our newest program, Caregiver Connect

By |2020-04-06T16:37:45-05:00July 5th, 2019|Categories: Decoding Dravet Blog|

Earlier this year, Dravet Syndrome Foundation (DSF) was approached by Greenwich Biosciences, to discuss and find a meaningful way that they could give back to the Dravet syndrome community. Our discussion covered the many needs within our community, particularly the burden of our caregivers. As a result, DSF has developed a multi-year project known as [...]