DSF’s Day of Dravet Workshops are a time for patients and their families to come together to learn about research and treatment options, connect with one another, and be a part of a DSF’s shared vision for a better outcome for those affected by Dravet syndrome. Participants come away informed, empowered and connected to a supportive community.
These workshops empower families to understand, seek out, and put into place medical care and services that will meet the unique and complex care needs of their loved ones. Included in these events are special activities for siblings, as well as an activity room for children with Dravet syndrome that they may attend with a caregiver. Participants have the unique opportunity to learn from members of DSF’s Medical & Scientific Advisory boards, as well as local specialists, and have the opportunity to ask questions about the latest treatment options and research.
Find details and registration for the location nearest you here.