Assessing the impact of caring for a child with Dravet syndrome: Results of a caregiver survey

By |2018-05-02T12:55:07-05:00May 2nd, 2018|Categories: DSF Research Review|Tags: , |

(Campbell JD, et al. 2018) This is the second part of the survey described in the last review, in which 30 caregivers of patients with Dravet syndrome treated at Children's Hospital Colorado responded to questions regarding the impact of caring for their patients. In this part, the authors describe anxiety/depression and discomfort/pain as the greatest [...]

The direct and indirect costs of Dravet Syndrome

By |2018-05-02T10:24:39-05:00May 2nd, 2018|Categories: DSF Research Review|Tags: , |

(Whittington MD, et al. 2018) The authors sent out an online survey to 60 caregivers whose patients with Dravet syndrome were treated at Children's Hospital Colorado. The survey asked in-depth questions about how caring for an individual with Dravet syndrome has affected their family and work experience, and 34 caregivers responded. The average direct health [...]