December 2016 - Dravet Syndrome Foundation

Crouch gait in Dravet syndrome

(Black, L., Gaebler-Spira, D. 2016). The authors studied 12 patients with Dravet syndrome and SCN1A mutations, aged 2-17. All patients showed gait disturbances and fine motor delays, and those over the age of 6 had crouch gait and joint deformities. The authors studied how electrical signals travel along the muscles of the peripheral nervous system (arms/legs, [...]

Duration of use of oral cannabis extract in a cohort of pediatric epilepsy patients

By Nicole Villas|2016-12-09T19:31:20-05:00December 9th, 2016|Categories: DSF Research Review|Tags: cannabis, caregiver reports, oral extracts|

(Treat, et. al. 2016). Neurologists at The Children's Hospital Colorado followed 119 patients as they began treatment with various caregiver-chosen oral cannabis extracts (OCEs). Patients used the extracts for an average of 11.7 months and 71% of the patients stopped treatment during the study. Caregivers who had relocated to Colorado were more likely to perceive benefit [...]