Upcoming EL-PFDD Meeting February 3rd!


Upcoming EL-PFDD Meeting February 3rd!

In Honor of Trey – Frankfort, IL

By |2016-11-16T14:54:56-05:00August 19th, 2016|Categories: Making a Difference|

Suttondale Subdivision in Frankfort, IL organized the Annual Subdivision Charity Softball Challenge. Trey Gryga is an 11 year old boy who lives in the Suttondale Subdivision and unfortunately was diagnosed with Dravet when he was 3 months old. We decided to make the Dravet Syndrome Foundation the beneficiary for our charity event. With lots of [...]

In Honor of Khloe – Purchase, NY

By |2016-11-16T14:55:09-05:00August 10th, 2016|Categories: Making a Difference|

Khloe was diagnosed with complex partial seizure disorder when she was 16 months old. Although her doctors believe she had seizures as early as six months, given her EEGs. A year ago her diagnosis changed when her Neurology team found a rare genetic mutation that linked her seizures to Dravet syndrome. Dravet syndrome is a rare [...]


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