The Dravet Syndrome Foundation sets aside a limited amount of funds to offer small grants to patients with Dravet syndrome and related epilepsies for necessary medical equipment, therapy devices, and educational aids associated with these conditions that are not covered through private insurance or other assistance programs. This program is open to all patients worldwide who meet the program requirements. Once funds are depleted for a PAG session, the program closes for the remainder of the year.

Items that are currently covered under this program include:

  • Durable medical goods (such as wheelchairs, orthotics, cooling vests, etc.)
  • Therapy programs
  • Communication devices such as iPads
  • Costs associated with implementation of the ketogenic diet

The program does not cover medical co-pays, therapy costs, respite assistance or service animals.

If the equipment or therapy you are interested in is not listed above, please contact us with more details on the requested item and we can review its eligibility.

 The patient assistance grant program is now closed for 2016 and will reopen on March 1, 2017.

Our grant application period typically begins on March 1st at 12:01am EST. When funds are depleted for the year, the program will be closed until the next application cycle and notification will be placed on our website. Applications will be reviewed and approved on a first-come, first-served basis. An applicant may apply once per grant cycle with a yearly maximum of $1,500 and a life-time award maximum of $5,000.

The Board of Directors will review information on all applications and will make a determination. We request up to 45 days to review your application. Your returned application packet should include the following:

  • Completed application
  • A recent letter from the child’s physician or health care professional explaining the medical necessity of your request
  • A letter of denial from the insurance provider stating that the requested equipment and/or service was denied
  • Proof of all income (including your most recent W2 form)
  • Any other documentation pertaining to the nature of your request All information is kept confidential.

Applications that are incomplete or missing requested additional information will not be reviewed until complete. All applicants will receive an email stating approval or denial of their application. Denied applicants wishing to re-apply must provide additional documentation of a change of status in circumstances or that other alternatives have failed.

By awarding these grants, DSF is making no recommendation to the appropriateness or safety of a particular piece of equipment or therapy in treating Dravet syndrome and associated epilepsies and conditions. DSF and its Board of Directors are not responsible for the safety and use of awarded equipment or therapies. Applicants are strongly urged to consult with their medical professionals and therapists regarding equipment and therapies that would be most beneficial for their situation. We will not divulge application information without written consent from the applicant or their legal guardian. We do ask that award recipients submit a photo showing the child using their equipment or therapy that we may use for the advertising purposes of this grant program. Children will only be identified by their first name and only with written consent of their guardian.