The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families.


We understand:

  • The ongoing need to fund innovative research
  • The urgency in finding better treatments
  • The motivation of our donors to make an impact specifically in the fields of Dravet syndrome and related epilepsies
  • The importance of transparency and accountability of not only our organization, but the researchers that we fund
  • The need for global collaboration in order to find a cure




Dravet Syndrome Foundation was founded by a group of parents with the purpose of expediting research to find a cure and better treatments for their afflicted children. It was established in the state of Connecticut and was designated a tax-exempt public charity in the United States in October 2009 by the Internal Revenue Service under Section 501(c)(3).



Organizational & Financial Information

As a non-profit organization, Dravet Syndrome Foundation realizes the significance of financial transparency to our supporters. We pride ourselves on maintaining operating expenses at a minimum to ensure that the generous gift of every donor truly brings us one step closer towards a cure.


DSF is registered as a tax-exempt public charity by the Internal Revenue Service under Section 501(c)(3). DSF’s tax identification number is 27-0924627.


Letter of Determination for 501(c)(3)



Tax Filings

Audited Financial Statement


Tax Filings

Audited Financial Statement


Tax Filings


Tax Filings

Annual Report