Mission
The mission of the Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies, while providing support to affected individuals and families.
We understand:
- The ongoing need to fund innovative research
- The urgency in finding better treatments
- The motivation of our donors to make an impact specifically in the fields of Dravet syndrome and related epilepsies
- The importance of transparency and accountability of not only our organization, but the researchers that we fund
- The need for global collaboration in order to find a cure
History
The Dravet Syndrome Foundation was founded by a group of parents with the purpose of expediting research to find a cure and better treatments for their afflicted children. It was established in the state of Connecticut and was designated a tax-exempt public charity in the United States in October 2009 by the Internal Revenue Service under Section 501(c)3.
Organizational & Financial Information
As a non-profit organization, the Dravet Syndrome Foundation realizes the significance of financial transparency to our supporters. We pride ourselves on maintaining operating expenses at a minimum to ensure that the generous gift of every donor truly brings us one step closer towards a cure.
The DSF is registered as a tax-exempt public charity by the Internal Revenue Service under Section 501(c)(3). The DSF’s tax identification number is 27-0924627.