The following list contains links to third party web sites. The Dravet Syndrome Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our families, a listing here should not be construed as an endorsement for any products or services they may provide.
Research & Education
American Epilepsy Society
American Epilepsy Outreach Foundation
Child Neurology Foundation
Epilepsy Foundation
Epilepsy Phenome/Genome Project
Epilepsy Therapy Development Project
Joey’s Song – The Joseph Gomoll Foundation
National Institute of Neurological Disorders and Stroke (NINDS)
Purple Day
SUDEP Aware
Ketogenic Diet
The Charlie Foundation (US)
Matthew’s Friends (UK)
KetoCal Recipes (US)
Patient & Family Resources
CeCe Cares
Danny Did
LGS Foundation
Seizure Tracker
Caligor Rx (importer of stiripentol)
Pamphlets
DSF Brochure
School Issues
Fact Sheet for School Settings
Support Groups
Friends & Extended Family Support
If you have a suggestion for a resource, please email info@dravetfoundation.org