Resources

Partners
CURE - Citizens United for Research in Epilepsy
A nonprofit organization dedicated to finding a cure for epilepsy by raising funds for research and by increasing awareness of the prevalence and devastation of this disease.
Dravet Syndrome Support - Yahoo Group
This family support group is for parents and carers of children diagnosed with Dravet Syndrome. This includes children diagnosed with SMEI (Severe Myoclonic Epilepsy of Infancy) and SMEB (Severe Myoclonic Epilepsy of infancy Borderline).
IDEA League UK
A UK registered charity that works to advance the education of UK professionals, fund medical research and support families affected by Dravet Syndrome in the United Kingdom.
Intractable Childhood Epilepsy (ICE) Alliance
Offers education, research, and support for treatment resistant childhood epilepsies, including Dravet syndrome.

Research & Education
American Epilepsy Society
American Epilepsy Outreach Foundation
Child Neurology Foundation
The D.E.J.O.R. Foundation 
Epilepsy Foundation
Epilepsy Phenome/Genome Project
Epilepsy Therapy Development Project
Joey’s Song – The Joseph Gomoll Foundation
National Institute of Neurological Disorders and Stroke
Purple Day
SUDEP Aware

Ketogenic Diet
The Charlie Foundation (US)
Matthew's Friends (UK)
KetoCal Recipes (US)

Patient and Family Resources
Danny Did
LGS Foundation
Seizure Tracker
Caligor Rx (importers of stiripentol & clobazam

If you have a suggestion for a resource, please email info@dravetfoundation.org. We will then contact the organization for permission to add them to our resource list.