DSF RESEARCH ROADMAP

 

Dravet Syndrome Foundation (DSF) was established to raise research funds for Dravet syndrome and related epilepsies. DSF takes pride in managing those funds and appropriating them toward research projects that will result in better treatments and, ultimately, a cure for Dravet syndrome.

 

Since 2009, DSF has funded 23 research grants valued at over $2.5 million. With guidance from our scientific advisory board, we seek to build on successful studies and support risky but exciting new lines of investigation with high potential payoffs. We also bring together a larger group of researchers, epileptologists, neurologists, geneticists, and other professionals during our annual Research Roundtable so they can share their learning and collaboratively chart the path forward for Dravet research. Through these efforts, DSF hopes to help scientists unlock the mysteries of Dravet syndrome.

 

In order to actively drive research toward our goals, DSF and its advisory boards use the following roadmap to evaluate research proposals and encourage Dravet-specific studies. Understanding that science rarely follows such a direct path, we strive to maintain focus on the task at hand to achieve results as quickly and efficiently as possible.

 

Our roadmap follows the biological pathways of Dravet syndrome that have the most potential to lead to a cure, beginning with the presence of an abnormality in SCN1A and/or other causative genes, and ending with the seizures and symptoms these abnormalities cause in the developed brain. Solutions to the earlier stages of the pathways have the potential to yield a cure, while solutions to the later stages have the potential to improve the quality of life of children and adults living with Dravet syndrome. DSF sees these as equally important goals.

 

Together, we strive for better treatments and a cure.