2016 DSF BIENNIAL CONFERENCE

 

Dravet Syndrome Foundation presented its 2nd Biennial Family and Professional Conference in collaboration with Nicklaus Children’s Hospital in June of 2016 in Coral Gables, Florida. The conference was jointly sponsored by Nicklaus Children’s Hospital Brain Institute.

 

The following Conference Speakers have given us permission to share their presentations from our 2016 event.

 

Dravet 101

Ian Miller, MD – Nicklaus Children’s Hospital

Powerpoint

 

Dravet Syndrome Introduction

Linda Laux, MD – Ann & Robert H. Lurie Children’s Hospital

Video

 

Co-morbidities in Dravet Syndrome

Kelly Knupp, MD – University of Colorado

Video

Powerpoint

 

Second-line Treatments in Dravet Syndrome

Ian Miller, MD – Nicklaus Children’s Hospital

Video

 

Recognition and Intervention of Autism Spectrum Disorder in Children with Dravet Syndrome

Roberto Tuchman, MD, FAAP, FAAN – Nicklaus Children’s Hospital

Video

Powerpoint

 

Genetics in Dravet Syndrome & Pediatric Epilepsies

Parul B. Jayakar, MD – Nicklaus Children’s Hospital

Video (coming soon)

 

Epilepsy Surgery in Dravet Syndrome: Is Seizure-Freedom Possible?

Michael S. Duchowny, MD – Nicklaus Children’s Hospital

Video

Powerpoint

 

The Incidence of Dravet Syndrome: A Population-Cohort Study

Joseph Sullivan, MD – University of California, San Francisco

Video

Powerpoint

 

Neuromodulation in Dravet Syndrome

Eric Segal, MD – Northeast Regional Epilepsy Group

Video

Powerpoint

 

Next Generation Sequencing Approaches to Finding Genes that Modify the Clinical Severity of Dravet Syndrome

Michael Hammer, PhD – University of Arizona

Video

Powerpoint

 

Emergency Action Plan in Dravet Syndrome

Sayed Naqvi, MD – Nicklaus Children’s Hospital

Video

Powerpoint

 

Speech and Sleep in Dravet Syndrome

Ingrid Scheffer, FAA, FAHMS – Florey Institute of Neuroscience and Mental Health

Video (coming soon)

 

Sleep in Dravet Syndrome

Paula P. Schleifer, MD – Nicklaus Children’s Hospital

Video

 

Management of Status Epilepticus

Ann Hyslop, MD – Nicklaus Children’s Hospital

Video

 

How to be your Child’s Best Educational Advocate

Dena Hook – TS Alliance

Video

Powerpoint

 

5 Things Everyone Should Know about Genetics & Dravet Syndrome

Nicole Villas, M Ed – Dravet Syndrome Foundation

Video

Powerpoint

 

Seizure Response Dogs & Your Family

Sabrina Ott

Video

Powerpoint

 

Preparing for Your Initial/Next Appointment

Patricia Dean, ARNP, MSN, CNRN – Nicklaus Children’s Hospital

Video

 

Neuropsych Evaluations for Children with Dravet Syndrome

Brandon M. Korman, Psy D, ABPP-CN – Nicklaus Children’s Hospital

Video

 

Understanding & Changing Behavior in Children with Dravet Syndrome

Brandon M. Korman, Psy D, ABPP-CN – Nicklaus Children’s Hospital

Video

 

Review of Ketogenic Diet in the Treatment of Dravet Syndrome

Maria Del Pilar Gennaro, ARNP – Nicklaus Children’s Hospital

Video

 

Puberty & Dravet Syndrome – Girls

Lourdes Falcon, MD

Video

Powerpoint

 

Puberty & Dravet Syndrome – Boys

Charlotte Dravet, MD & Sue Goodliffe

Powerpoint (coming soon)

 

Creative meal planning in the Ketogenic Diet

Cristina Visona, MS, RD, LD/N, CSP – Nicklaus Children’s Hospital

Video

Powerpoint

 

Introduction to Pharmacology

Michelle Welborn, Pharm D – ICE Epilepsy Alliance

Video

Powerpoint

 

What Warrants Further Testing?

Annapurna Poduri, MD, MPH – Boston Children’s Hospital

Video

Powerpoint

 

Fenfluramine: History & How We Came to Clinical Trial in Dravet Syndrome

Joseph Sullivan, MD – University of California, San Francisco

Video

Powerpoint

 

Mortality in Dravet Syndrome

Ingrid Scheffer, FAA, FAHMS – Florey Institute of Neuroscience and Mental Health

Video (coming soon)

 

SUDEP & Dravet Syndrome

Ronald Kanter, MD – Nicklaus Children’s Hospital

Video

Powerpoint

 

Using Stem Cells to Study Ion Channel Epilepsies

Jack M. Parent, PhD – University of Michigan

Video

 

Use of Human Induced Pluripotent Stem Cells to Discover Biomarkers for SUDEP

Lori L. Isom, PhD – University of Michigan

Video

 

Gait in Dravet Syndrome

Ingrid Scheffer, FAA, FAHMS – Florey Institute of Neuroscience and Mental Health

Video

 

Brain Inflammation in Childhood Epilepsy

Sooky Koh, MD, PhD – Emory University/Children’s Healthcare of Atlanta

Video

 

Summary of North American Consensus on Optimal Diagnosis & Management

Elaine Wirrell, MD – Mayo Clinic

Video

Powerpoint

 

Cannabidiol, Ataluren & SUDEP: Mechanisms, Therapies & Preventions

Orrin Devinsky, MD – NYU Langone

Video

Powerpoint

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