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DSF BIENNIAL CONFERENCE 2014

Dravet Syndrome Foundation presented its 1st Biennial Family and Professional Conference in collaboration with Lurie Children’s Hospital on June 26-29, 2014 in Chicago, Illinois. The conference was jointly sponsored by Northwestern, Feinberg School of Medicine.

 

The following Conference Speakers have given us permission to share the slides from their presentations at this year’s event.

 

The Importance of Clinical Research in Pediatric Epilepsy

Anne T. Berg, PhD

 

Creative Management of the Ketogenic Diet and Diet Therapies

Robyn Blackford, RDN, LDN

 

Future Planning:  Guardianship and Special Needs Trusts

Darcy Chamberlin, Esq.

 

Living in the Shadows:  Siblings of Kids with Neuro Challenges

Kathryn “Kat” Davitt, MOT CCLS, OTR

 

Cannabidiols & Epilepsy

Orrin Devinsky, MD

 

Importance in Lab Research in Pediatric Epilepsy

Tracy Dixon-Salazar, PhD

 

Caring for the Caregiver

Tina Drossos, PhD

 

Sudden Unexplained Death in Epilepsy

Alica M. Goldman, MD, PhD, MS

 

Current Research in Rodent Model of SCN1A Mutations

Jennifer A. Kearney, PhD

 

Cognition in Dravet Syndrome

Kelly Knupp, MD

 

Literature Overview of the Rodent Model of DS (SCN1A)

Sookyong Koh, MD, PhD

 

Neuropsychological Assessment in Dravet Syndrome

Brandon M. Korman, PsyD

 

Ketogenic Diet Therapies for Dravet Syndrome

Eric H.W. Kossoff, MD

 

Dravet Syndrome:  Diagnosis, History, Seizure Evolution

Linda C. Laux, MD

 

Improving Seizure Outcomes Through Online Seizure Diaries

Rob Moss

 

SUDEP in Dravet Syndrome – Concurrent Studies in Children and Animals

Douglas R. Nordli, Jr., MD & George B. Richerson, MD, PhD

 

Modeling Dravet Syndrome with Induced Pluripotent Stem Cells (iPSCs)

Jack M. Parent, MD

 

Psychiatric Issues in Dravet Syndrome:  Focusing on Medications

Sigita Plioplys, MD

 

Puberty & Sexual Development

Lisa Simons, MD

 

Current Treatments of Dravet Syndrome

Joseph Sullivan, MD

 

Insurance, Medicaid and Social Security Income

Michelle Welborn, PharmD

 

Introduction to the Pharmacology of Anti-Epileptic Drugs for Parents and Caregivers

Michelle Welborn, PharmD

 

Sleep, Circadian Rhythms:  Implications for Pediatric Epilepsy

Phyllis C. Zee, MD, PhD