Supported By


Dravet Syndrome Foundation presented its 1st Biennial Family and Professional Conference in collaboration with Lurie Children’s Hospital in June of 2014 in Chicago, Illinois. The conference was jointly sponsored by Northwestern, Feinberg School of Medicine.


Our next conference will take place in Coral Gables, FL, on June 23-26, 2016.

Please check back for conference updates as they become available in early 2016.


The following Conference Speakers have given us permission to share the slides from their presentations at our 2014 event.


The Importance of Clinical Research in Pediatric Epilepsy

Anne T. Berg, PhD


Creative Management of the Ketogenic Diet and Diet Therapies

Robyn Blackford, RDN, LDN


Future Planning:  Guardianship and Special Needs Trusts

Darcy Chamberlin, Esq.


Living in the Shadows:  Siblings of Kids with Neuro Challenges

Kathryn “Kat” Davitt, MOT CCLS, OTR


Cannabidiols & Epilepsy

Orrin Devinsky, MD


Importance in Lab Research in Pediatric Epilepsy

Tracy Dixon-Salazar, PhD


Caring for the Caregiver

Tina Drossos, PhD


Sudden Unexplained Death in Epilepsy

Alica M. Goldman, MD, PhD, MS


Current Research in Rodent Model of SCN1A Mutations

Jennifer A. Kearney, PhD


Cognition in Dravet Syndrome

Kelly Knupp, MD


Literature Overview of the Rodent Model of DS (SCN1A)

Sookyong Koh, MD, PhD


Neuropsychological Assessment in Dravet Syndrome

Brandon M. Korman, PsyD


Ketogenic Diet Therapies for Dravet Syndrome

Eric H.W. Kossoff, MD


Dravet Syndrome:  Diagnosis, History, Seizure Evolution

Linda C. Laux, MD


Improving Seizure Outcomes Through Online Seizure Diaries

Rob Moss


SUDEP in Dravet Syndrome – Concurrent Studies in Children and Animals

Douglas R. Nordli, Jr., MD & George B. Richerson, MD, PhD


Modeling Dravet Syndrome with Induced Pluripotent Stem Cells (iPSCs)

Jack M. Parent, MD


Psychiatric Issues in Dravet Syndrome:  Focusing on Medications

Sigita Plioplys, MD


Puberty & Sexual Development

Lisa Simons, MD


Current Treatments of Dravet Syndrome

Joseph Sullivan, MD


Insurance, Medicaid and Social Security Income

Michelle Welborn, PharmD


Introduction to the Pharmacology of Anti-Epileptic Drugs for Parents and Caregivers

Michelle Welborn, PharmD


Sleep, Circadian Rhythms:  Implications for Pediatric Epilepsy

Phyllis C. Zee, MD, PhD