Press

The Dravet Syndrome Foundation is pleased to offer current and archived press releases and media coverage on Dravet syndrome and related research, as well as the history, mission, and future plans of our foundation. If you are a journalist and need hi-resolution photos or wish to discuss a story idea about Dravet syndrome and/or the Dravet Syndrome Foundation, please contact the DSF's secretary, Amanda Renz.

Press Coverage

January 2010

Newschannel 8
Make A Wish Foundation Fundraiser – This video features DSF Founder Lori O’Driscoll and her daughter, Ciara, who has Dravet syndrome.

Read the story behind DSF.

May 2010

President wins New England Patriots MVP Community Award and $5,000 grant
Watch video from the awards ceremony here

Press Releases & In The News

Exceptional Parent article
Ciara’s Butterfly Bash 2010
Ciara’s Butterfly Bash 2010 Raises over $90,000
President featured in Children's Memorial Foundation Magazine