We began having these benefits four years ago to raise awareness in our community, and to do everything we can to contribute to research so that a cure can be found for our son. He is the most important thing in our lives, and we will do anything we can to help give him a […]
The Goddard School & its parent community organized a fundraiser in honor of Ella. Her sister, Clara, is in the Pre-K classroom and the school wanted to help raise awareness and funds for the Dravet Syndrome Foundation. Over a two week period, they sold butterflies of all colors, which were hung in their foyer […]
In honor of Hayden, his parents recently hosted a t-shirt fundraiser, with proceeds benefiting DSF. Thanks to an outpouring of support from family and friends, they raised almost $3,000! Thank you to Hayden, his parents and their amazing supporters!
Thrivent Financial’s Employee Volunteer Team held a Misfit Gift sale on January 19, 2015. They sold new, unwanted gifts items from the holidays, donated by their corporate employees. Sales proceeds and cash contributions totaled $226.33 from the sale, and were matched by Thrivent Financial, with a check for $452.66 being sent to the Dravet Syndrome Foundation in […]
Special thanks to Brian Frate for running a 2nd marathon to raise awareness of Dravet syndrome in honor of his daughter, Paige. His efforts over the last two years have raised over $2800 for DSF!!!
Originally in an effort to minimize more “stuff” in the way of presents coming into our house for our daughters, Rose and Maggie’s birthdays (they share a birthday – May 19!) we thought of asking guests to use any money they would have so graciously spent, in a charitable way instead. Rose absolutely adores her […]
Finn was a first grader at Tillman Elementary School in Kirkwood, Missouri. He passed away in February and his teachers and students planned a Fun Run in his memory. They raised money for DSF, as well as Camp Circle Star, in Finn’s memory. Everyone wore their purple DSF bracelets when they crossed the “Finn-ish” […]
Genevieve’s grandfather, Paul, is a member of The Sapphire Bullets of Love Featuring the Bonaventure Horns, a 12 piece band in Savannah, GA that started over 25 years ago. The band plays about 4 “public” events a year and many private events as well. The band is like a family…a ‘guys club’ if you will, […]
Right after the Thanksgiving holiday, Pam Jackson, Amy Stamm and Cheryl Dietrich were sitting around on a Friday night and thought how fun it would be to have a neighborhood Christmas party, but thought—not a lot of people would come. Then they thought of a fundraiser that people would come to! On December 20th , they […]
The County K-9’s 4-H Club in Luverne, MN, decided to have a Pizza Ranch Tip Night fundraiser for the Dravet Syndrome Foundation as one of their Community Pride Projects. This event took place on Monday, Nov. 10th, at the Luverne Pizza Ranch. We decided to do this for the Dravet Syndrome Foundation as Luella Johnson, […]