NY5thgen – New York

NY5thgen is a car club, made up of mainly camaro owners in the NY area. Every summer for the past 6 years we’ve held a BBQ/Fundraiser for our members. We auction off various items, all proceeds go to the DSF.  

In Honor of Scarlett – Houston, TX

Two young girls, Ella Juarez and Avery Cooper, who live on Scarlett’s street held a bake sale in her honor to raise funds for Dravet Syndrome Foundation. Their generosity and kind spirits help to raise $764! They are aiming to raise over $1,000 next year!

In Honor of Trey – Frankfort, IL

Suttondale Subdivision in Frankfort, IL organized the Annual Subdivision Charity Softball Challenge. Trey Gryga is an 11 year old boy who lives in the Suttondale Subdivision and unfortunately was diagnosed with Dravet when he was 3 months old. We decided to make the Dravet Syndrome Foundation the beneficiary for our charity event. With lots of […]

In Honor of Khloe – Purchase, NY

  Khloe was diagnosed with complex partial seizure disorder when she was 16 months old. Although her doctors believe she had seizures as early as six months, given her EEGs. A year ago her diagnosis changed when her Neurology team found a rare genetic mutation that linked her seizures to Dravet syndrome. Dravet syndrome is a […]

We’re Partnering With The Mighty!

We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have a growing home pageon The Mighty and appear on many stories on the site.   The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder, […]

In Honor of Tyler – Bridge City, TX

We began having these benefits four years ago to raise awareness in our community, and to do everything we can to contribute to research so that a cure can be found for our son. He is the most important thing in our lives, and we will do anything we can to help give him a […]


The Goddard School & its parent community organized a fundraiser in honor of Ella. Her sister, Clara, is in the Pre-K classroom and the school wanted to help raise awareness and funds for the Dravet Syndrome Foundation.   Over a two week period, they sold butterflies of all colors, which were hung in their foyer […]


In honor of Hayden, his parents recently hosted a t-shirt fundraiser, with proceeds benefiting DSF. Thanks to an outpouring of support from family and friends, they raised almost $3,000! Thank you to Hayden, his parents and their amazing supporters!  


Thrivent Financial’s Employee Volunteer Team held a Misfit Gift sale on January 19, 2015. They sold new, unwanted gifts items from the holidays, donated by their corporate employees.  Sales proceeds and cash contributions totaled $226.33 from the sale, and were matched by Thrivent Financial, with a check for $452.66 being sent to the Dravet Syndrome Foundation in […]


Special thanks to Brian Frate for running a 2nd marathon to raise awareness of Dravet syndrome in honor of his daughter, Paige. His efforts over the last two years have raised over $2800 for DSF!!!