The fundraiser that the Johnson Family did to celebrate the first Dravet Syndrome Awareness Day was a BIG success!! “a cake 4 a cure” raised $1,500 to help find a cure for Dravet Syndrome!! They were so thrilled and excited that our friends and family were so supportive of this effort!! This money was […]
Emilee is a 7th grader where she is on the Principal’s Honor Roll. She enjoys singing, reading, writing, musical theater and art. Hanging out with friends is also a favorite pastime. For her Bat Mitzvah project, Emilee chose to raise money for DSF in honor of her cousin Talia who has Dravet syndrome. This […]
Mirai-Josiah is 5 years old and was diagnosed with Dravet syndrome at the age of 1 year and 9 months. Although, they suspected he had Dravet syndrome at an earlier age. In May of 2013 Mirai had a seizure and after the seizure he suffered severe brain damage which left him blind and unable to […]
The Ward Family hosted the “Tyler’s 2nd Bar B Q Bash” benefit in honor of their son Tyler who has Dravet syndrome. Once again, Flippers tattoos donated all proceeds from tattoos on that day and there was live music and an auction. Thanks to the Ward Family for all of their hard work raising awareness […]
On June 8th Amy Lopez helped to organize a fundraising event with her former roller derby league. New Hampshire Roller Derby donated a dollar for every ticket sold at the bout. Amy also sold bracelets for a total of $525 to help raise awareness and funds for Dravet Syndrome Foundation in honor of her son […]
On May 24th Amy Lopez helped to organize a dress down day at her school where she is an elementary art teacher. Amy also sold bracelets which were a big hit with all her students. Her school raised $701.49 for the Dravet Syndrome Foundation in honor of her son Isaias!
Teachers & students of Connellsville Junior High used their annual bike run this year to fundraise for the Dravet Syndrome Foundation, in honor of their teacher’s daughter Sydney, who suffers from Dravet Syndrome. “Cycle 4 Sydney” was held on May 7, 2013 and raised $500.00 for the foundation. Thank you to all participating teachers, students, […]
In honor of Hanna, her parents, Tim & Brehanna, organized a team for The Color Run: Austin. This group of 18 runners raised over $2,300 for DSF and looks like they had a lot of fun doing it! Thanks to everyone who participated in this effort.
In honor of Tyler Ward, his mom, Tiffany, and her coworkers hosted a bake sale at the Capital One branch in Bridge City, TX, where they raised $414.00. The other branches in the Golden Triangle District participated by donating $5 to be able to wear jeans and a purple shirt. Between this and individual donations […]
Nolan asked guests at his 6th birthday party to consider a donation to DSF in honor of his cousin in lieu of gifts. $213 was raised in Cooper’s honor – thank you Nolan!