IN HONOR OF LUELLA – Luverne, MN

The County K-9′s 4-H Club in Luverne, MN, decided to have a Pizza Ranch Tip Night fundraiser for the Dravet Syndrome Foundation as one of their Community Pride Projects.  This event took place on Monday, Nov. 10th, at the Luverne Pizza Ranch.  We decided to do this for the Dravet Syndrome Foundation as Luella Johnson, […]

IN HONOR OF MASON – St. Anne, IL

Mason’s father, Rob, works for Comcast. He listed the Dravet Syndrome Foundation for iVolunteer, and Comcast awarded DSF $1000! What great timing in honor of Epilepsy Awareness month and a huge surprise for Rob, Amanda and McKinley in honor of Mason. Thank you to Comcast and the Parchim Family!     Big sister, McKinley, holds […]

IN HONOR OF TYLER – Bridge City, TX

Tyler’s 3rd Annual BBQ Bash raised over $3,700 for DSF!  Tyler’s parents, Tiffany and Eric, once again organized a fun event for family and friends to help bring awareness to Dravet syndrome and DSF.  Thank you to Tiffany, Eric, and everyone who helped make this such a great event!               […]

IN HONOR OF ANNA – Union, OH

Ashley Svec was the overall female winner of the Triple Crown Fun Run and was allowed to choose a charity that would receive a portion of the winnings.  She chose the Dravet Syndrome Foundation in honor of Anna Mimms, a sixteen year old girl who has Dravet Syndrome. Said Ashley, “Anna  is the sweetest young […]

IN HONOR OF LUELLA – Luverne, MN

  The fundraiser that the Johnson Family did to celebrate the first Dravet Syndrome Awareness Day was a BIG success!! “a cake 4 a cure” raised $1,500 to help find a cure for Dravet Syndrome!! They were so thrilled and excited that their friends and family were so supportive of this effort!! This money was […]

IN HONOR OF TALIA – Irvine, CA

Emilee is a 7th grader where she is on the Principal’s Honor Roll.  She enjoys singing, reading, writing, musical theater and art.  Hanging out with friends is also a favorite pastime.   For her Bat Mitzvah project, Emilee chose to raise money for DSF in honor of her cousin Talia who has Dravet syndrome.  This […]

IN HONOR OF MIRAI-JOSIAH – Japan

Mirai-Josiah is 5 years old and was diagnosed with Dravet syndrome at the age of 1 year and 9 months. Although, they suspected he had Dravet syndrome at an earlier age. In May of 2013 Mirai had a seizure and after the seizure he suffered severe brain damage which left him blind and unable to […]

IN HONOR OF TYLER – Bridge City, TX

The Ward Family hosted the “Tyler’s 2nd Bar B Q Bash” benefit in honor of their son Tyler who has Dravet syndrome.  Once again, Flippers tattoos donated all proceeds from tattoos on that day and there was live music and an auction.  Thanks to the Ward Family for all of their hard work raising awareness […]

IN HONOR OF ISAIAS – Manchester, NH

On June 8th Amy Lopez helped to organize a fundraising event with her former roller derby league. New Hampshire Roller Derby donated a dollar for every ticket sold at the bout. Amy also sold bracelets for a total of $525 to help raise awareness and funds for Dravet Syndrome Foundation in honor of her son […]

IN HONOR OF ISAIAS – Lowell, MA

On May 24th Amy Lopez helped to organize a dress down day at her school where she is an elementary art teacher. Amy also sold bracelets which were a big hit with all her students. Her school raised $701.49 for the Dravet Syndrome Foundation in honor of her son Isaias!