IN HONOR OF SAWYER – Merion Station, PA

Originally in an effort to minimize more “stuff” in the way of presents coming into our house for our daughters, Rose and Maggie’s birthdays (they share a birthday – May 19!) we thought of asking guests to use any money they would have so graciously spent, in a charitable way instead.  Rose absolutely adores her […]

In Memory of Finn

Finn was a first grader at Tillman Elementary School in Kirkwood, Missouri. He passed away in February and his teachers and students planned a Fun Run in his memory. They raised money for DSF, as well as Camp Circle Star, in Finn’s memory.   Everyone wore their purple DSF bracelets when they crossed the “Finn-ish” […]

IN HONOR OF GENEVIEVE – Savannah, GA

Genevieve’s grandfather, Paul, is a member of The Sapphire Bullets of Love Featuring the Bonaventure Horns, a 12 piece band in Savannah, GA that started over 25 years ago.  The band plays about 4 “public” events a year and many private events as well. The band is like a family…a ‘guys club’ if you will, […]

IN HONOR OF JUSTIN – Stuart, FL

Right after the Thanksgiving holiday, Pam Jackson, Amy Stamm and Cheryl Dietrich  were sitting around on a Friday night and thought how fun it would be to have a neighborhood Christmas party, but thought—not a lot of people would come. Then they thought of a fundraiser that people would come to! On December 20th , they […]

IN HONOR OF LUELLA – Luverne, MN

The County K-9′s 4-H Club in Luverne, MN, decided to have a Pizza Ranch Tip Night fundraiser for the Dravet Syndrome Foundation as one of their Community Pride Projects.  This event took place on Monday, Nov. 10th, at the Luverne Pizza Ranch.  We decided to do this for the Dravet Syndrome Foundation as Luella Johnson, […]

IN HONOR OF MASON – St. Anne, IL

Mason’s father, Rob, works for Comcast. He listed the Dravet Syndrome Foundation for iVolunteer, and Comcast awarded DSF $1000! What great timing in honor of Epilepsy Awareness month and a huge surprise for Rob, Amanda and McKinley in honor of Mason. Thank you to Comcast and the Parchim Family!     Big sister, McKinley, holds […]

IN HONOR OF TYLER – Bridge City, TX

Tyler’s 3rd Annual BBQ Bash raised over $3,700 for DSF!  Tyler’s parents, Tiffany and Eric, once again organized a fun event for family and friends to help bring awareness to Dravet syndrome and DSF.  Thank you to Tiffany, Eric, and everyone who helped make this such a great event!               […]

IN HONOR OF ANNA – Union, OH

Ashley Svec was the overall female winner of the Triple Crown Fun Run and was allowed to choose a charity that would receive a portion of the winnings.  She chose the Dravet Syndrome Foundation in honor of Anna Mimms, a sixteen year old girl who has Dravet Syndrome. Said Ashley, “Anna  is the sweetest young […]

IN HONOR OF LUELLA – Luverne, MN

  The fundraiser that the Johnson Family did to celebrate the first Dravet Syndrome Awareness Day was a BIG success!! “a cake 4 a cure” raised $1,500 to help find a cure for Dravet Syndrome!! They were so thrilled and excited that their friends and family were so supportive of this effort!! This money was […]

IN HONOR OF TALIA – Irvine, CA

Emilee is a 7th grader where she is on the Principal’s Honor Roll.  She enjoys singing, reading, writing, musical theater and art.  Hanging out with friends is also a favorite pastime.   For her Bat Mitzvah project, Emilee chose to raise money for DSF in honor of her cousin Talia who has Dravet syndrome.  This […]