2016 Elsa Graham’s 5K for Dravet


The 2nd annual Elsa Graham’s 5K for Dravet has been postponed. Check back here in coming weeks for the new date! The event will be held at Pocahontas State Park. Registration begins at 7:30am, with the fun run beginning at 8:30am.


Elsa Graham was born on September 12, 2013 , a smiley, beautiful little girl. When she was five months old, she experienced her first seizure. With the diagnosis of Dravet and medication adjustments she had an almost seizure free year full of love and laughter. In April of 2015 another seizure struck. After months in the hospital and every intervention tried, the seizures became too big and our sweet Elsa got her wings on July 12, 2015. She left the wonderful gift of her organs and her brain went to Harvard University for research. Her legacy will live forever.


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Our hashtag for the event is: #Elsa5Kdravet