2016 DSF Biennial Family and Professional Conference


Registration Now Open

2016 Dravet Syndrome Foundation

Biennial Family & Professional Conference

The Westin Colonnade

Coral Gables, FL

June 23-26, 2016



DSF will be presenting its 2nd Biennial Family and Professional Conference in collaboration with Niklaus Children’s Hospital on June 23-26, 2016, in Coral Gables, Florida. This 3-day event is unique in that it is designed to unite all groups committed to improving the lives of those with Dravet syndrome – including families, caregivers, clinicians, researchers and professionals in the pharmaceutical industry. There will be speaker presentations on the latest advances in research as well as sessions with up to date information impacting patient care. This event allows the opportunity to foster new relationships and collaborations, both for families and professionals.


This is a great opportunity to meet and interact with other DSF member families while learning about the latest advances in treatments, care, and research. If you have questions at this time, please contact Mary Anneor Amandaby email or at 203-392-1950.


Registration is now open – click here to register


Pre-registration is required. Registration pricing increases after May 27, 2016. CME’s are available for professionals.


This year, we will be replacing printed materials with a conference app that can be downloaded to your smartphone, tablet or computer. It will be available about 60 days before the event and will allow you to connect with other attendees, view sessions and speakers, as well as share information on social media during the event and receive important updates or last minutes changes in real-time.


We will once again offer conference pass sharing for families. Two parents or a parent and caregiver may share one conference registration if they are taking turns caring for a Dravet child onsite. Only one person per pass will be permitted in sessions at any one time.


Additional event information and registration is available on the conference website at www.dsfconference.org




GW Pharma 200

GW FAMILY SCHOLARSHIP PROGRAM: Thanks to a generous grant from GW Pharmaceuticals, a limited number of scholarships are available for families to attend this year’s conference. Two scholarship options are available. The first is for a single registration for the event. The second includes a single registration and hotel room for up to 3 nights.  The first wave of applications will be reviewed in early April. To apply for the program, select which scholarship you are applying for and complete the appropriate application. Applicants will be contacted by the end of April as to whether or not their application has been approved.


Registration Scholarship application

Registration & Hotel Scholarship application 


Applications are in writeable PDF format. To complete the application, save the file to your computer and include your last name in the document title. You can then type your answers into the form to complete the application. Make sure to save the document again after you complete it. All applications should be emailed to Mary Anne at maryanne.m@dravetfoundation.org




Hotel Group Rates:

The hotel group rates expired on May 22, 2016. Rooms may still be available for the event, but are not guaranteed at the previous group rate. Hotel information can be found on their website, here


Conference App:

The event will have a conference app that can be downloaded on your phone, tablet or computer. Once you have registered, you will receive an email with a code and information on how to download the app.


IMPORTANT: Make sure you are on the DSF email list to receive updates on this and other events. You can join here




2016 dsf conference sponsor logos v3.11.16


EVENT SPONSORS: Download the sponsorship prospectus here


Presentations from our 2014 event may be viewed here

Contact for more info