2016 Dravet Syndrome Awareness Day – June 23


DSF is pleased to partner with fellow Dravet organizations for the 3rd International Dravet Syndrome Awareness Day on June 23, 2016.


Dravet organizations around the world plan to celebrate the day with unique fundraising and awareness events. On June 23rd and throughout the month of June, we encourage you to host events and/or share facts on Dravet syndrome.


How will you celebrate? Families in the US – If you would like us to promote your planned events and share your photos on the DSF Facebook page, contact Mary Anne


How to get involved:

Participate in our Dear Dravet Syndrome postcard campaign

As part of this year’s Dravet awareness campaign, we are doing a “Dear Dravet Syndrome” Postcard Campaign. This is your opportunity to anonymously share your feelings about Dravet syndrome. Get a 4×6 postcard and embellish it in anyway that you like and write your secret on the same side. We will upload and share the images on social media, as well at our 2016 Conference, which kicks off on Dravet Awareness Day, June 23.  Details and instructions can be found at this link


Host An Event

Host a fundraising and awareness event at home, work or school. You can find some ideas here  



Make sure to join the Dravet Syndrome Awareness Day Facebook pagewhere you can find memes and facts on Dravet syndrome. If you are a Twitter user, use #DravetAwareness and share your experience! You can also share our press releasewith local media outlets.


Post A Tribute

Remembering all of those who struggle with Dravet syndrome is an important part of the day. Post on our Dravet Syndrome Awareness Day Facebook pageand also share your stories on social media.


Buy your Awareness Merchandise

Order DSF merchandiseto wear on Dravet Awareness Day and throughout the month of June.