The fundraiser that the Johnson Family did to celebrate the first Dravet Syndrome Awareness Day was a BIG success!! “a cake 4 a cure” raised $1,500 to help find a cure for Dravet Syndrome!! They were so thrilled and excited that their friends and family were so supportive of this effort!! This money was raised in honor of their precious 4 year old Luella. Luella LOVES frosting and whenever mommy makes a cake she is always very willing to “take a taste”!
They also designed t-shirts specifically for Luella to sell. We had about 130 friends and family wearing purple “Little Luella” shirts on the first Dravet Syndrome Awareness Day!! It was a great way to raise awareness for Dravet Syndrome! The butterfly design on the shirt was made from Luella’s hand prints!
THANK YOU Johnson Family, for all of your hard work!