About Us

The mission of the Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related conditions, while providing support to affected individuals and families. We pride ourselves on maintaining operating expenses at a minimum to ensure that the gift of every donor truly brings us one step closer to a cure.

We understand:

• The need to fund innovative research
• The urgency in finding better treatments
• The motivation of our donors to make an impact specifically in the fields of Dravet syndrome and related conditions
• The importance of transparency and accountability of not only our organization, but the researchers that we fund

Thanks to the generosity of many people – from family members and friends to corporations to those sympathizers we have never met – we will award our first $100,000 research grant in April of 2010. If that is possible in less than 7 months from our inception, we believe that by working together we can find a cure in our children’s lifetime!

Organizational and Financial Information

As a non-profit organization, the Dravet Syndrome Foundation realizes the significance of financial transparency to our supporters. We pride ourselves on maintaining operating expenses at a minimum to ensure that the generous gift of every donor truly brings us one step closer towards a cure.

DSF is registered as a tax-exempt public charity by the Internal Revenue Service under Section 501(c)(3). DSF's tax identification number is 27-0924627.

Click below to view our:

• 501(c)3 approval letter
• Tax returns
• 2009 990EZ

DSF Staff

• Board of Directors
• Lori O'Driscoll, President
• Mary Anne Meskis, Vice-President
• Amanda Renz, Secretary
  
• Roberta Berry, Corresponding Secretary

• Medical Advisor
• Jack Parent, M.D.

• Research Newsletter Editor
• Kim Amend

• Webmaster
• Pat Amend