#TeamDSF

With more than half of our staff and board made up of parents, grandparents, and caregivers of patients with Dravet syndrome, we bring deep, personal insight into the realities of living with this disorder every day. This perspective is strengthened by a team of world-class scientists and medical experts at the forefront of Dravet research and treatment innovation.

Senior Leadership

Fund Development & Administration

Amanda Nehme Clicerio
Amanda Nehme-Clicerio

Marketing & Digital Communications Manager

Advocacy & Outreach

Board of Directors

Those who serve on our Board of Directors do so on a voluntary basis, without compensation. We appreciate each of them sharing their gifts and talents with the organization. If you are interested in serving on our Board, please view this page for additional information.

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