Search Results for: Ketogenic Diet

Liu Lin Thio, MD, PhD – Washington University in St. Louis Joel R. Garbow, PhD – Washington University in St. Louis
Research News

Ketogenic Diet Modulated Brain Energy Metabolism in Dravet Syndrome

Liu Lin Thio, MD, PhD – Washington University in St. Louis Joel R. Garbow, PhD – Washington University in St. Louis $150,000 TWO YEAR RESEARCH AWARD Co-funded with JAM for Dravet Children with Dravet syndrome have drug-resistant epilepsy characterized by different seizure types along with developmental regression and intellectual impairment. Dravet syndrome is genetic with

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Woman researcher using microscope in lab
Research News

The Efficacy of Ketogenic Diet in 60 Chinese Patients With Dravet Syndrome

This was a retrospective study, gathering information on Dravet patients who, over the last nine years, had followed a strict ketogenic diet for at least 12 weeks. In total, there were 60 children identified. The duration of their ketogenic diets ranged from 12 weeks to 54 months, with a median duration of 44 weeks. In

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Decoding Dravet Blog

14th Annual DSF Research Roundtable

DSF held the 14th annual Research Roundtable on the evening of Thursday, November 30, 2023. The initial DSF Research Roundtable was held in 2010, and was truly a small gathering of founding families with a handful of researchers and clinicians familiar with Dravet syndrome. They sought to understand the current state of research and to

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DSF Homepage Dravet Family
Decoding Dravet Blog

5th Annual Dance for Dravet – October 6th!

The 5th annual Dance for Dravet will take place on Friday, October 6th at Third Degree Glass Factory in St Louis, Missouri. Started in 2019 by the Brennan and Odlaug families, the event was designed to raise awareness of Dravet syndrome and raise funds for DSF, in honor of family member Anna Odlaug who is

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DSF Homepage Dravet Family
Decoding Dravet Blog

Marlins for Mason Update!

The First Annual Marlins for Mason Billfish Release Tournament was held August 4th and 5th in Ocean City, Maryland with all proceeds from the event being donated to the Dravet Syndrome Foundation (DSF). Marlins for Mason is a non-profit marlin release tournament created by Amanda Prather (mother of Mighty Mason, Dravet Syndrome Warrior) and a committee

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DSF Homepage Dravet Family
Decoding Dravet Blog

Talking About SUDEP

Today’s blog will mostly focus on SUDEP, or Sudden Unexpected Death in EPilepsy. This topic is hard to talk about, but in the rare epilepsy community, these hard conversations represent realities we are faced with almost daily. Just last month we recognized June 15th as Dravet Remembrance Day as part of Awareness Month; a day

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DSF Homepage Dravet Family
Decoding Dravet Blog

The 2023 DSF Patient Assistance Grant Program is now open!

Medical expenses are high when you have a loved one with Dravet syndrome, and we know everyone in our community needs help at one time or another. By providing financial assistance for necessary medical equipment, the DSF Patient Assistance Grant (PAG) Program provides a valuable resource to patients, helping them offer the best quality of care

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DSF Strategic Plan Update

Much has changed in the field of Dravet syndrome since the inception of DSF in 2009. In 2018, DSF debuted its 5-year strategic plan to articulate the long‐range direction and priorities for our foundation and patient community. The content for this strategic plan was derived by examining the Dravet syndrome landscape. We listened to a

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DSF Conference

DSF Biennial Family & Professional Conference Our biennial conference is a 3-day event designed to unite all stakeholders committed to improving the lives of those with Dravet syndrome Register Now! DSF Biennial Conference June 20-22, 2024, at the JW Marriott Minneapolis Mall of America In collaboration with Mayo Clinic and the Minnesota Epilepsy Group Our

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Cleveland Clinic

Cleveland Clinic

Clinic Lead: Ajay Gupta, MD Head, Pediatric Epilepsy https://my.clevelandclinic.org/departments/neurological/depts/epilepsy/pediatric-doctors To make an appointment: Penelope Hoytt, Intake Coordinator 216-445-0601 epilepsynursepeds@ccf.org Services offered: Pediatric neurologist/epileptologist Adult neurologist/epileptologist Genetic counselor Pediatrician Cardiologist Orthopedics Gastroenterologist Endocrinologist Pulmonologist Sleep specialist Metabolic specialist Developmental or neuro- psychologist Dietician Keto clinic Speech pathologist/therapist Occupational therapist Physical therapist Social work Caregiver support services

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